We’d like to remind Forumites to please avoid political debate on the Forum.

This is to keep it a safe and useful space for MoneySaving discussions. Threads that are – or become – political in nature may be removed in line with the Forum’s rules. Thank you for your understanding.

📨 Have you signed up to the Forum's new Email Digest yet? Get a selection of trending threads sent straight to your inbox daily, weekly or monthly!

Alzheimers & Council Tax

124»

Comments

  • Mojisola
    Mojisola Posts: 35,571 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    I'm not sure what AA would be for OH does manage reasonably well. He's not at that stage yet that he needs much in the way of extra care.

    If he's struggling to use the TV remote, he must be having problems in other areas.

    If you are doing all the caring and happy to do it for free, you don't need to claim AA.

    Having cared for relatives with dementia, I know it will get a lot worse and, if he is entitled to AA, I would claim it and put it away to pay for the help you will need.

    If he is entitled to AA, you would be able to claim Carer's Allowance - you wouldn't get the full amount but it would still be worth getting.
  • cattermole
    cattermole Posts: 3,539 Forumite
    Think of all the beauty still left around you and be happy - Anne Frank :A
  • Thank you for all your helpful replies. We have an appointment with our Neurologist consultant on Thursday so will see where we go from there.
  • xylophone
    xylophone Posts: 45,727 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    I'm not sure what AA would be for OH does manage reasonably well. He's not at that stage yet that he needs much in the way of extra care.

    This is worth a read. Contact your local Age UK, Citizens Advice Bureau or advice agency if you need help with the claim form.
    http://www.ageuk.org.uk/money-matters/claiming-benefits/attendance-allowance/

    "Attendance Allowance is a benefit for people who are 65 years old or over
    who need help with personal care, or need supervision by day or someone to
    watch over them by night, because of physical or mental disability. The
    allowance is based on the help you need, not the help you actually get. "

    If your spouse's memory is deteriorating, he may well need supervision.
    Does he (eg) forget to turn off the gas rings?
  • cattermole wrote: »
    That I can understand re having a sleep! x

    I was a carer for over 20 years and a Direct Payments Support worker for a while. My OH works in Social Services.

    Has his DRE (Disability Related Expenditure) been taken into account when assessing charges? You can offset, gardening costs, window cleaning, taxi fares. Any medication that he needs that isn't covered by a prescription. I do think a lot of people's expenditure is not being taken into account.

    Any other care being purchased privately i.e. Crossroads could possibly be offset as well against LA provided care from a charging point of view because it is a DRE.


    MSE is better than taking a degree at University! I've never heard of DRE, and assumed that DLA or AA would be used for the things that he can't (and I can't) do any more.


    Our Social Worker has said that we can use any remaining funds from DH's LA allowance for Crossroads, but as his attendance hours exceed the allocated hours, there isn't anything spare!


    It's certainly something to raise with our SW. Thank you. :)
    Thank you for all your helpful replies. We have an appointment with our Neurologist consultant on Thursday so will see where we go from there.


    It really is as easy as pie to get the reduction. I phoned the Town Hall (once I'd been educated on MSE!), and the one page form was sent out within a couple of days.


    The front part was completed by me, just the usual name and address info etc, and then I gave the form to our GP, who completed the reverse.


    If I remember rightly, this merely asked for his condition, and the date when the diagnosis was made. From the date the form was posted, until the day the refund reached our bank account was well under a fortnight.


    My husband was first diagnosed with Multiple System Atrophy 10 years ago, and since then, not only the brain cells, but one of his kidneys has atrophied, or died. He's now at Stage 6/7 of Alzheimer's (there are 7 Stages), so I know only too well the progression of AD.


    I hope the Council Tax info helps, and I wish you and your family well. :)


    xx
  • cattermole
    cattermole Posts: 3,539 Forumite
    MSE is better than taking a degree at University! I've never heard of DRE, and assumed that DLA or AA would be used for the things that he can't (and I can't) do any more.


    Our Social Worker has said that we can use any remaining funds from DH's LA allowance for Crossroads, but as his attendance hours exceed the allocated hours, there isn't anything spare!


    It's certainly something to raise with our SW. Thank you. :)




    It really is as easy as pie to get the reduction. I phoned the Town Hall (once I'd been educated on MSE!), and the one page form was sent out within a couple of days.


    The front part was completed by me, just the usual name and address info etc, and then I gave the form to our GP, who completed the reverse.


    If I remember rightly, this merely asked for his condition, and the date when the diagnosis was made. From the date the form was posted, until the day the refund reached our bank account was well under a fortnight.


    My husband was first diagnosed with Multiple System Atrophy 10 years ago, and since then, not only the brain cells, but one of his kidneys has atrophied, or died. He's now at Stage 6/7 of Alzheimer's (there are 7 Stages), so I know only too well the progression of AD.


    I hope the Council Tax info helps, and I wish you and your family well. :)


    xx

    You are doing an amazing job with your Husband x

    Is he being charged for services though provided by the LA?

    I can start another thread if you like in D&D on DRE/Charging/Care Packages because I haven't seen that may threads on these topics.
    Think of all the beauty still left around you and be happy - Anne Frank :A
  • cattermole wrote: »
    You are doing an amazing job with your Husband x

    Is he being charged for services though provided by the LA?

    I can start another thread if you like in D&D on DRE/Charging/Care Packages because I haven't seen that may threads on these topics.


    The LA have agreed he needs to attend a club for 5 hours x 2 days a week. Originally I think it was one day for 4 hours, and I've kept asking for more till I was given this. He attends 5 days for 4 hours, and I'm paying the difference.


    A thread on D & D would be great, as you obviously know your subject and people would really appreciate reliable information.


    xx
This discussion has been closed.
Meet your Ambassadors

🚀 Getting Started

Hi new member!

Our Getting Started Guide will help you get the most out of the Forum

Categories

  • All Categories
  • 351.9K Banking & Borrowing
  • 253.5K Reduce Debt & Boost Income
  • 454.1K Spending & Discounts
  • 244.9K Work, Benefits & Business
  • 600.5K Mortgages, Homes & Bills
  • 177.4K Life & Family
  • 258.7K Travel & Transport
  • 1.5M Hobbies & Leisure
  • 16.2K Discuss & Feedback
  • 37.6K Read-Only Boards

Is this how you want to be seen?

We see you are using a default avatar. It takes only a few seconds to pick a picture.