Disability costs ? (leisure, adaptations etc? )

Brassedoff

One or my first chair was supplied by Wheelchair services (NHS) but the second I paid £2000 towards the £900 ceiling. The new one is setting me back over £4250 as it is uber light with painted rims etc.

The cost of keeping clean & hygienic is quite high, I jet spend £15 a week on wipes, backs, gels and creams

I pay for my prescriptions cost me £104 a year because I decide to work and not lay down and mull.

I have a wet room, that cost me £6,500, the water bill must be double the norm, so add £250 to that.

As for going out, I see what disabled/carers concessions are around when I get to the place I am going to.

My bed cost £5500 (electric one with a special mattress, I still have Cheryl Cole sleep with me, so the bed is (although massive), pretty normal amart from its electric movements and mattress.

My office chair cost me £1200. This enables me to work. A single orthopaedic bed for my office was £1500

The extra costs associated with doing business are pretty much cancelled out by how much I would pay for travel if I had to regularly visit customers. I use Bria for my comms

I don't pay for a panic alarm or man down device as I work in that market developing those type of products.

So overall it is expensive. But wait until your relative has had treatment and time to recover. Touch wood, they might come out of it OK

Parva

So glad you're working Brassedoff, only wish I could. Congrats on overcoming your own personal disability, just don't expect everyone to be able to accomplish what you have..... Bear in mind that we don't have our own business or £10k to throw at stuff to make life easier.

lemontart

Karen_taris wrote: »

Its quite touching :sad:

but it involves an accident, hospital and don't know the outcome of what they might tell us, so just being prepared on expenses should the worse case scenario happen.

You can get a loan chair for red cross in interim until the "oligists" have given you more info.

I started using a chair now and again during last 3 years but now at point I had to get one as need it more and more - cost £150 off ebay - once I have a better idea what is happening may get nhs one.

My main costs have been chair, additional costs of certain items each month due to some issues I have. A lot really depends on the individual and there personal needs be it transport, level of disability where they live etc etc. I got a perching stool and replacement crutches from freecylce ,

I know I am going to face some hefty costs running into at least 3k to alter house if my abilty to get up stairs gets any worse as already crawling up to bathroom

sunnyone

Karen_taris wrote: »

For disabled people with mobility issues (wheelchair), is there a list of costs that could be incurred in their life as they are going to need changes?
Disability is mobility.

I have a high end active user chair provided by the NHS alongside the powerchair that they also supply me and both were chosen and built for me, Im due another new powerchair soon but I will keep the manaul wheelhchair as even though I cant use it without a carer it was very expensive and its only suitable for me.

so leisure costs, mobility costs, adaptation costs, hiring equipment.

Leisure? what is that?

Can you list some of these expenses (if you deal with these people/ scenarios often) please.

what are the common monthly expenditure things that disabled people might require ?

Brassedoff wrote: »

One or my first chair was supplied by Wheelchair services (NHS) but the second I paid £2000 towards the £900 ceiling. The new one is setting me back over £4250 as it is uber light with painted rims etc.

The cost of keeping clean & hygienic is quite high, I jet spend £15 a week on wipes, backs, gels and creams

The NHS povide wipes ect. when you need them, I get adult sized wet wipe, dry wipes etc. I do pay a pittance every month for gel from Home and Bargain buys though at under £1 per month.

The NHS provide my with the help I need for pressure care etc., which means the they supply the creams/gels etc. I need to protect my skin, they also make sure I have the bed, cushions for my armchair ect. that I need.


I pay for my prescriptions cost me £104 a year because I decide to work and not lay down and mull.


We both pay for yearly tickets too, its amazingly cheap when you consider the price of both my and my husbands meds.


I have a wet room, that cost me £6,500, the water bill must be double the norm, so add £250 to that.

We have paid to adapt my home, we have never had a penny to help despite me being severely disabled.

As for going out, I see what disabled/carers concessions are around when I get to the place I am going to.

My bed cost £5500 (electric one with a special mattress, I still have Cheryl Cole sleep with me, so the bed is (although massive), pretty normal amart from its electric movements and mattress.

My office chair cost me £1200. This enables me to work. A single orthopaedic bed for my office was £1500

The extra costs associated with doing business are pretty much cancelled out by how much I would pay for travel if I had to regularly visit customers. I use Bria for my comms

I don't pay for a panic alarm or man down device as I work in that market developing those type of products.

So overall it is expensive. But wait until your relative has had treatment and time to recover. Touch wood, they might come out of it OK

We have always paid for everything in full apart from having a council band reduction because I need a wheelchair indoors, life is expensive when you are severely disabled.

Op. wait and see what happens, the NHS must supply him with a 'chair if he needs one. Many people want to use a 'chair post accident but it can seriously affect their recovery if they have accees to a wheelchair.

If your relative needs a wheelchair to visit attractions they need to contact the attractions and they will normally have 'chairs available for visitors so thet they are not alienated from the family in the short term.

sheeps68

I personally think its the so called little and hidden costs that add up. A cleaner - I'd do it myself if I could and would prefer that. The extra trips in car that if healthy you could walk or cycle. The ready prepared vegetables as cooking from scratch is best option but at least that way you get fresh. The handyman for tasks you'd like to do and have skills to do.

Of course there are the big things like specialist equipment too. For me that's a nebuliser that I carry with me at all times which is very expensive but the smaller day to day things add up massively.

Brassedoff

sunnyone wrote: »

The NHS povide wipes ect. when you need them, I get adult sized wet wipe, dry wipes etc. I do pay a pittance every month for gel from Home and Bargain buys though at under £1 per month.

The NHS provide my with the help I need for pressure care etc., which means the they supply the creams/gels etc. I need to protect my skin, they also make sure I have the bed, cushions for my armchair ect. that I need.

We have always paid for everything in full apart from having a council band reduction because I need a wheelchair indoors, life is expensive when you are severely disabled.

I never knew that! Will be on the phone early tomorrow

Those wipes are horrible. They are OK for various thing, save for what I need them for, so it's the Andrex and the stick :rotfl: for me.

The gels are only £1 or £2

Shopping around is a tad counter productive in my car, my wife just gets the stuff I am comfortable with.

L0RRY

sunnyone wrote: »

The NHS povide wipes ect. when you need them, I get adult sized wet wipe, dry wipes etc.

blimey, i didn't know that! i spend a small fortune on wipes so will be on the phone to them on monday!

Heycock

The law regarding what you're calling "wheelchair taxis" must have changed since I retired 9 months ago to become a full time carer. A provider of transport, private OR public cannot discriminate against a disabled person by charging extra. If your local taxi firm charges more for a wheelchair, report them and use someone else.

Brassedoff

Heycock wrote: »

The law regarding what you're calling "wheelchair taxis" must have changed since I retired 9 months ago to become a full time carer. A provider of transport, private OR public cannot discriminate against a disabled person by charging extra. If your local taxi firm charges more for a wheelchair, report them and use someone else.

That has been the case and a rule of the local licensing authorities, but don't worry. On here, anything to underline victimisation is to the for and the suppressor of the truth.

Just get on to the subject of taxis for kids with conditions that normally would see them walk and their dressing gown parents out a work and you'll really see the cork fly out the bottle!

Richie-from-the-Boro

The PH versus Hackney argument has cropped up many times on MSE. The same 'reasonableness' of argument has and continues to be polluted by both campaigning DDA warriors and taxi companies alike who are equally guilty of muddying the waters. Wheelchair friendly vehicles that are non-folding 'wheel on' or 'ride on' and that ramp / lift / loading facility takes up the otherwise extra seats that would exist on a 7 seater. A private hire [mini cab] vehicle where the normal 4 seats only are available, and the folding chair goes in the boot. That's no different to a suitcase or a bag of shopping.

Essentially a 'wheelchair vehicle' is and should be charged at the 7 bum seat or thereabouts rate, and a 4 seater PH at the 4 bum seat or thereabouts rate, this [the PH rate] regardless of how many people are in the vehicle. The driver is required to load both the folding wheelchair in the PH vehicle, and the 'ride on' in the case of a 'wheelchair friendly', vehicle, s/he would also be required to clamp / strap down in the case of the rideo on.

Far too often campaigners set themselves up for a deliberate fall by ordering a known to be unsuitable vehicle. If its a bariatric folding chair that won't fit, or a disabled person whose level of disability is such that s/he can not transfer themselves unaided from chair to taxi seat they are ordering the wrong vehicle for the job. People deliberately and understandably order the cheepo PH to do the expensive WFV job but then whine because they get a bad service from the taxi company. It is more expensive to buy, maintain and utilise a WFV and its wholly unreasonable to expect a driver to spend 20 minutes providing a service that would take 10 minutes if the customer was able bodied. Most of these wheelchair friendly vehicles cost a very great deal more, not just a little more, but a lot more for a Hackney plate.

Taxi companies and their PH drivers are also guilty, but I understand where they are coming from, ita a big ask to dismantle a chair they don't understand, or cram an oversize set of now dismantled metal parts into the boot of a saloon car only to have to rebuild it at the other end. This triples the time it take him or her to make a quid, not counting the possibility that lifting a ten stone individual from chair to seat is something not even the NHS will allow a single person to do. All in all being disabled is expensive, but 'reasonableness is required by both parties, please try to use the right tool for the job, and pay the going rate for the hire of that tool - the correct type of taxi.