CFS diagnosis what next?

Isis_Black

i finally got the confirmation that i have chronic fatigue syndrome, I'm now just wondering what my next steps are?

i get the feeling i wont get PIP as it sounds like ATOS are very tough on what is allowed and not allowed

could i possibly apply for a blue badge without getting any sort of disability payment?

Torry_Quine

Isis_Black wrote: »

i finally got the confirmation that i have chronic fatigue syndrome, I'm now just wondering what my next steps are?

i get the feeling i wont get PIP as it sounds like ATOS are very tough on what is allowed and not allowed

could i possibly apply for a blue badge without getting any sort of disability payment?

Sorry to hear that, it's a dreadful disease to have. The most important thing is listen to your body and don't overdo things.

Are you getting ESA or indeed are you employed at present?

Isis_Black

no not employed
i was at uni till july last year but had to leave in yr 2, as i jut couldn't cope with that, a family and being so ill
i fully rely on my hubby who works full time

been told on may occasion to not even bother applying for DLA/PIP
just wondering if i should give it a shot though

Bennifred

Re: Blue Badge.
I don't claim any benefits, but I do have a Blue Badge. (I have MS.)

Torry_Quine

Isis_Black wrote: »

no not employed
i was at uni till july last year but had to leave in yr 2, as i jut couldn't cope with that, a family and being so ill
i fully rely on my hubby who works full time

been told on may occasion to not even bother applying for DLA/PIP
just wondering if i should give it a shot though

It's harder to get a blue badge without the mobility element of DLA/PIP but not impossible so if you think you're eligible then go ahead and apply.

If you feel that you have sufficient needs to get PIP then apply.

frenetic_2

If you feel that you have sufficient needs to get PIP then apply.

Yes, you should always apply, though of course it can be stressful, 'benefit and work' is a great online service, but it charges a annual fee, but see below.



I would suggest joining your local ME/CFS support group, they will have info on all matters relating to the condition, benefits, etc, they may even have dedicated welfare rights advisers.

luminated

I have ME/CFS but in addition to other ailments & get DLA HRM & MRC. I applied for a BB before I was awarded DLA & had the badge in my hand within days. However that it about two years ago when I understand it was less strict.

So apply for one as you've nothing to lose.

Also apply for DLA but preferably after you've mugged up on how to & there are some good guides on: -
http://www.actionforme.org.uk/get-informed/publications/

oldhand

Isis_Black wrote: »

no not employed
i was at uni till july last year but had to leave in yr 2, as i jut couldn't cope with that, a family and being so ill
i fully rely on my hubby who works full time

been told on may occasion to not even bother applying for DLA/PIP
just wondering if i should give it a shot though

Best thing is to apply,worst thing they can say is no.

SandraScarlett

It's definitely worth applying, for both DLA and the BB - as others have said, the worst they can say is "no", and they may say "yes"!

Good luck, and I wish you well.

xx