Parents of children with SE, what would you feel if u are told 'no budget'

lily76

when you are referred by PD for a therapy, ie. occupational therapy?

This happened to me twice. I was referred by my son's PD to occupational therapy but was told that there was no budget.

The impact on me is that I am reluctant to help others as well.

I normally would donate to any fundraiser who comes to me from children charity but after that I said no for several times.

This started in a cold winter day before last Christmas and just a few days after my baby got the 'a' label. I was stopped by a fundraiser for children who were said to be homeless during Christmas time and donated 3 pounds from my pay as you go mobile fee. From then on I kept getting phones from fundraising company. They told me that 'homeless' does not mean to sleep roughly on the streets but means that a child does not have a permanent home then has to live in a motel. And according to them these children are twice likely to develop mental illness. If I could donate 15 pound a month I can help to give the children a permanent home. I suddenly felt sick of this to be honest. The welfare for children in this country is far better than anywhere else in the world. Why should I use the money which I could use on private therapies for my own baby to help other children who obviously are their own parents' responsibility?

Ever since then I have been keeping saying a direct no to all the fundraisers coming to my door.

lika_86

There are good reasons not to give money to charities through people who fundraise door to door, I don't think that this is one of them.

If you don't want to give to charity or can't afford to, that's your choice, you don't have to, but to not give just because you couldn't access service which I understand (although correct me if I am wrong) are provided by the government and not charities seems petty.

Also you say that other children are their own parents' responsibility and yet you are complaining that your child doesn't have access to something that is presumably publicly funded. Is your child not your responsibility? (FAOD, I am not suggesting that occupational therapy shouldn't be publicly funded or whatever, only pointing out inconsistencies in your post).

lily76

lika_86 wrote: »

There are good reasons not to give money to charities through people who fundraise door to door, I don't think that this is one of them.

If you don't want to give to charity or can't afford to, that's your choice, you don't have to, but to not give just because you couldn't access service which I understand (although correct me if I am wrong) are provided by the government and not charities seems petty.

Also you say that other children are their own parents' responsibility and yet you are complaining that your child doesn't have access to something that is presumably publicly funded. Is your child not your responsibility? (FAOD, I am not suggesting that occupational therapy shouldn't be publicly funded or whatever, only pointing out inconsistencies in your post).

I am paying all private therapies myself. If NHS can not meet every ones need then why cant we abolish it totally and go private on everything? Then the tax going into NHS will be released to each tax payer making them able to afford the medical care they need. Charity is not something you have to do but tax is. To compare NHS with a housing charity makes me feel you are just arguing for the sake of arguing.

NHS comes from tax and when it comes to tax, can I say I have no budget and can I let tax department join in a queue of waiting list behind all my bills?

My child is my responsibility but I do pay tax to a system which promises to care everyone. I have fulfilled my responsibility as a tax-payer, but NHS fails to help my child. They fail their responsibility.

mountainofdebt

lily76 wrote: »

I am paying all private therapies myself. If NHS can not meet every ones need then why cant we abolish it totally and go private on everything? Then the tax going into NHS will be released to each tax payer making them able to afford the medical care they need. Charity is not something you have to do but tax is. To compare NHS with a housing charity makes me feel you are just arguing for the sake of arguing.

NHS comes from tax and when it comes to tax, can I say I have no budget and can I let tax department join in a queue of waiting list behind all my bills?

My child is my responsibility but I do pay tax to a system which promises to care everyone. I have fulfilled my responsibility as a tax-payer, but NHS fails to help my child. They fail their responsibility.

Lord knows the NHS is not perfect....but when you have an organisation that was created nearly 70 years ago when some of today's common place treatments were procedures were the stuff of science fiction what do you expect?

Come to think of it I would rather the NHS with all its imperfections than have a system like they have in the US where the first question they ask you is not what's wrong but where's your insurance

geoffky

Charity is very very big business with very many getting over £100k a year wages and therefore do not get a penny from me...But small local ones who are not employment fronts get a few quid...

lily76

mountainofdebt wrote: »

Lord knows the NHS is not perfect....but when you have an organisation that was created nearly 70 years ago when some of today's common place treatments were procedures were the stuff of science fiction what do you expect?

Come to think of it I would rather the NHS with all its imperfections than have a system like they have in the US where the first question they ask you is not what's wrong but where's your insurance

You say so because you are not in my boots.

I strongly prefer the US way. My disappointment to NHS actually comes from the comparison between the two.

I expect nothing from science fiction but I can get the service I paid for.

My fault, I should not open such a topic.

lily76

geoffky wrote: »

Charity is very very big business with very many getting over £100k a year wages and therefore do not get a penny from me...But small local ones who are not employment fronts get a few quid...

I once bypass a job agency. There are some advertisements looking for fundraiser offering salary of 10 pounds/ hour plus bonus. A bit shocked. I used to think them as volunteers.

geoffky

Lilly i was today listening to !!!!!! Cheneys memoirs and he was talking about when his father was born as they still had the receipt from the hospital in the 1930s and it was for $37..I thought thank god for the nhs as that was a hell of a lot of money in those days....
The nhs is the best we have and it is something to be proud of having used health services all over the world..
The worst i used was japan...Frighteningly bad..And very impersonal.
I have spent a fortune (£10K on just one treatment alone) on private health...And not once has it been head and shoulders above what you get from the NHS..Not once have i thought that is was value for money..

Janey7

I don't think the welfare for children in this country is 'far better than anywhere else in the world'. There was an interesting article on the BBC website today (http://www.bbc.co.uk/news/health-22555243) - apparently the UK ranks only 16th in the United Nations league table of well-being, and has higher rates of child mortality than other developed countries.

I really am sorry that you have been having problems getting the medical help you need with your child, but I read your post as implying you think children without a secure home are somehow not really deserving of help.

But the fact is that children growing up amongst the stress of constantly moving around from one temporary accommodation (which is all too frequently filthy and unsuitable for young children) to another are going to be at an increased risk of developing health problems.Society shouldn't wash their hands of these children simply because their own parents are not in a position to be able to help them.

coolcait

I have absolutely no idea what this thread is about.

The question posed is:

Parents of children with SE, what would you feel if u are told 'no budget'

What does 'SE' stand for? I'm guessing that it is not 'South East', given the context.

What/who is the 'PD'?

Is there a dispute about the definition of 'homeless'?

Or about the impact which 'homelessness' (however defined) might have on a child?

Is it about learning how to say 'no' to charity muggers ( and others)?

Or something else?

I could write a long post based on what I think the OP is asking.

For once, I'll resist that temptation, and write a long post asking the OP to explain what the thread is about.

And see what the answer is.

jazabelle

You do know the US system means paying hundreds, if not thousands for insurance a month, plus paying a fortune in copays and medication on top of it.

They are the lucky ones - many can't afford the insurance at all, particularly if they have any kind of pre-existing condition, and have to go thousands into debt for an illness, or simple hospital visit, or even go bankrupt.

For every illness you have to sit there thinking can I afford to see a doctor? What if it's serious? Will I be able to pay the rent and see a doctor?

But sure, sounds just great.

I have multiple disabilities and rely on the NHS. It's not perfect, not by a long shot. However, if I was living in the US I wouldn't be alive now as I couldn't afford what I can access here.

And I assumed SE was some kind of condition? I wish I could ban acronyms from the world!