DLA Refusal letter for Crohn's

aleisha2k5

I have recently sent off my dla form, I did it online and sent more imformation by post.

Last week a woman rang me from DLA and ask why my form was late, so i explain and also told her a few things about my illness.
She said she would contact my specialist and give him 4 weeks to reply and also wait as they hadn't received my extra information.

I got a letter today dated the same day as the phone call, saying that i have not been awarded any DLA!
so the decision has been made with my form ONLY! no specialist letter or any of my extra information that had my complete medical history, GP letter, Future appointments, conformation of scans, supporting letters of friends and family etc...

what should i do? any help much appreciated. this has felt like a huge kick in the face, being ill is bad enough having someone who doesnt know you imply your lying even worse!!. xx

sja75

Hello Aleisha

Download the following;

http://www.nacc.org.uk/downloads/dis...AdultGuide.pdf

It's an excellent document for DLA specifically for your condition.

All the best.

aleisha2k5

link does not work for me x

sja75

Oh...

Try the following link;

https://forums.moneysavingexpert.com/discussion/4368093

Click on the link in post 8, that ought to work for you.

aleisha2k5

hi thank you i have read all these and googled EVERYthing before submitting my form, i feel i have a strong case.

things like in the letter they say i need no help at night, when i clearly stated i need help 3-4 times everynight for around 15-20mins but if i soil myself this can be for around an hour.

Woody76

Hi

This happened to me with my claim for dla for fibromyalgia so I called to appeal and stated I had further information from gp to witness what was on my form (they also stated that I could do thngs which I clearly stated on form that I couldnt) so they said appeal would be delayed till further info recieved then got a letter saying the same as the first dated on day after I called to appeal. I rang again and was told I would have to appela in writing and the decision maker can choose not to look at supporting info if they want.
I wrote in to appeal using the form they sent me and again included my supporting letters from gp, consultant and works occupational health and stating what I disagreed with. I expected to have to go to tribunal at this stage and this was 3 weeks ago and today I revieved a letter saying I have recieved low rate care which was all I thought I would be entitled to so really pleased.
Now getting ready for battle when renewal due as will be the new pip system lol

Woody x

dogcat_2

Hi there, go for an appeal. I have Ulcerative Colitis and last year....almost a year ago now, I applied for DLA....I was turned down...and have gone for an appeal. I had a home visit medical last week.....lets wait and see what I get, or don't....good luck.

aleisha2k5

hi thanks for your replies, yes it seems as though they read my form but made up there own instead.

I think i will ring them on tuseday to see whats going on as ask why my decision was made with out contacting my specialist or waiting for my extra information even though she said she would on the phone!.

also really annoyed that the woman has lied so much in the things she put as to reasons I was not awarded. i've already spoken to a nurse (family friend) and personal friend that have just laughed and said take it straight to appeal as I could rip her findings apart of EVERYTHING she has said in my letter of refusal.

Its so disheartening though to go through all this and be told or made out to be such a liar by someone who doesnt even know what you look like let alone how you live each day of your life!!! the system sucks i understand they want as many people off it as poss and are trying to fish out the cons! but GEEEZZZZ! the whole process in itself will make you ill.

I have corhns along with other illnesses and struggle daily and if it wasnt for my parents and mostly my other half I would be unable to live any sort of normality! yet i see people claiming DLA getting higher rate for both and there is sod all wrong with them an just use the money to go out on the !!!! at weekends.

bloolagoon

aleisha2k5 wrote: »

hi thanks for your replies, yes it seems as though they read my form but made up there own instead.

I think i will ring them on tuseday to see whats going on as ask why my decision was made with out contacting my specialist or waiting for my extra information even though she said she would on the phone!.

also really annoyed that the woman has lied so much in the things she put as to reasons I was not awarded. i've already spoken to a nurse (family friend) and personal friend that have just laughed and said take it straight to appeal as I could rip her findings apart of EVERYTHING she has said in my letter of refusal.

Its so disheartening though to go through all this and be told or made out to be such a liar by someone who doesnt even know what you look like let alone how you live each day of your life!!! the system sucks i understand they want as many people off it as poss and are trying to fish out the cons! but GEEEZZZZ! the whole process in itself will make you ill.

I have corhns along with other illnesses and struggle daily and if it wasnt for my parents and mostly my other half I would be unable to live any sort of normality! yet i see people claiming DLA getting higher rate for both and there is sod all wrong with them an just use the money to go out on the !!!! at weekends.

I cannot comment on your capabilities, however, many with Chrons do work and have no care needs, perhaps you may need to concentrate on your mental health needs in your appeal.

Do you have a CPN or evidence in this area? Can they add value to your claim other than CD?

aleisha2k5

I dont have mental health issues,
I have crohns that for 3 years has never once been in remission. I know people work with crohns, I always have, up until october last year I ran my own company had been since I was 19.

my Crohn's has becoming increasingly worse over the past few month that has left me house bound for weeks at a time. my medication doesn't seem to control it even though its been up'd to the highest level and even changed a few times etc...
I have anal abuses that cause extreme pain when walking in the cold.
I haven't have more than 3 hours sleep at any one time in over a year as I need to get up for toilet needs. My specialist is really concerned about me at the moment and thinks that I needed to be checked for bowel cancer (MRI 3 Weeks ago) still waiting for the results of that next week.
also because of the steroid treatment i was getting by bones ache and joints swell and also become stiff. I have an ever lasting bruise on my back right down my spine, My spine and knees seem to be the worst effected. I have sent a copy of the letter to prove I am on the waiting list for a bone density scan.
I also have some unknown side effect that we hope will show up on the MRI scan results, that when i have the pain in my lower abdomen I can feel the 2 main veins/arteries being blocked and within seconds my legs go numb almost like a dead feeling.

im sorry but the help i need with these alone should be atleast lower rate of care? and this isnt even half the problems i suffer on a daily basis.
Trying to explain this to a health person is so difficult but I found that this works a little.
Imagine you have the worst flu ever and all you want to do is stay in bed for a week to recover, after that week you are back fit a well and living a normal life..... I feel like this every day however I don't get the chance to say 'thank god i havnt got the flu anymore' my 'flu' never goes away and its a constant battle so do it day after day after day after day.
sorry don't want to sound like I'm having a pop, its just so frustrating. x

sorry what is a CPN?

bloolagoon

aleisha2k5 wrote: »

I dont have mental health issues,
I have crohns that for 3 years has never once been in remission. I know people work with crohns, I always have, up until october last year I ran my own company had been since I was 19.

my Crohn's has becoming increasingly worse over the past few month that has left me house bound for weeks at a time. my medication doesn't seem to control it even though its been up'd to the highest level and even changed a few times etc...
I have anal abuses that cause extreme pain when walking in the cold.
I haven't have more than 3 hours sleep at any one time in over a year as I need to get up for toilet needs. My specialist is really concerned about me at the moment and thinks that I needed to be checked for bowel cancer (MRI 3 Weeks ago) still waiting for the results of that next week.
also because of the steroid treatment i was getting by bones ache and joints swell and also become stiff. I have an ever lasting bruise on my back right down my spine, My spine and knees seem to be the worst effected. I have sent a copy of the letter to prove I am on the waiting list for a bone density scan.
I also have some unknown side effect that we hope will show up on the MRI scan results, that when i have the pain in my lower abdomen I can feel the 2 main veins/arteries being blocked and within seconds my legs go numb almost like a dead feeling.

im sorry but the help i need with these alone should be atleast lower rate of care? and this isnt even half the problems i suffer on a daily basis.
Trying to explain this to a health person is so difficult but I found that this works a little.
Imagine you have the worst flu ever and all you want to do is stay in bed for a week to recover, after that week you are back fit a well and living a normal life..... I feel like this every day however I don't get the chance to say 'thank god i havnt got the flu anymore' my 'flu' never goes away and its a constant battle so do it day after day after day after day.
sorry don't want to sound like I'm having a pop, its just so frustrating. x

sorry what is a CPN?

Sorry I am reading several threads and thought you had depression too.