DLA - keeping mobility?

shirlgirl2004

FBaby wrote: »

I just wanted to warn to the fact that a neuro rehab facility is more likely to be considered as hospital care (even if community hospital) than care home.

I know of several in my area that are classed as nursing homes not hospitals.

wattdallas

Ettenna wrote: »

They did ask if she was in hospital and I told them exactly type of place it is.

It was the OT at the rehab place who said about the power pack option. I will have to ask her about it again.

Your OT is right - my daughter has the power pack on her nhs wheelchair ,makes it so much easier up hills:)

sunnyone

shirlgirl2004 wrote: »

Thanks. TBH if he was injured in a crash it would probably kill him which would be a relief for him no doubt.

We wouldn't be eligible for mobility and wouldn't want to be tied in to a contract when he has the funds already. He wouldn't be using it that often maybe a couple of times a month as there are other issues which makes him leaving the nusring home difficult.

When a WAV isnt fully crash tested it affects everyone travelling in the vehicle and not just the wheelchair user, I did lots of reasearch before deciding which one to buy and I bought a Paravan which is a German Chrysler Grand Voyager conversion (and most of the information on line is in German) and I love it.

For what you are proposing a WAV taxi might be best bet but only after researching what is available locally so that you can make sure that they understand you require the taxi for a wheelchair user and that the wheelchair needs securing safely (basic I know but with my experiances.......)

FBaby

You say it is specialist. A care home wouldn't not be considered 'specialist'. They provide care, not rehabilitation. I assume it is fully NHS funded? Is this as part of continuing care, or just rehabilitation after being discharge from the acute hospital? Does she receive nursing care?

I'm not saying you are wrong, but I would definitely make double sure as the word specialist definitely implies it is a lot more than a care home, and them making a mistake could mean not being eligible.

The ageUK fact sheet states:
'If you are receiving DLA, it stops 28 days after you enter an NHS hospital or ‘similar institution’ (this is not defined but could be a care home where you are fully funded by the NHS). If you have a Motability agreement, the amount payable from your DLA mobility component will still be paid while the agreement continues.'

It's the 'similar institution' funded by the NHS that would concern me.

Ettenna

FBaby wrote: »

You say it is specialist. A care home wouldn't not be considered 'specialist'. They provide care, not rehabilitation. I assume it is fully NHS funded? Is this as part of continuing care, or just rehabilitation after being discharge from the acute hospital? Does she receive nursing care?

I'm not saying you are wrong, but I would definitely make double sure as the word specialist definitely implies it is a lot more than a care home, and them making a mistake could mean not being eligible.

The ageUK fact sheet states:
'If you are receiving DLA, it stops 28 days after you enter an NHS hospital or ‘similar institution’ (this is not defined but could be a care home where you are fully funded by the NHS). If you have a Motability agreement, the amount payable from your DLA mobility component will still be paid while the agreement continues.'

It's the 'similar institution' funded by the NHS that would concern me.

She does receive nursing care as she has a trachy, a partly missing skull and T1 diabetes amongst other things. She has been discharged from an acute hospital and is receiving rehabilitation. She is fully funded by the PCT.

FBaby

mmmm, I am not an expect on DLA entitlement, but am on NHS services, and this definitely sound like a community service similar to hospital care (but transferred to the community). The fact that she is fully funded by the NHS would definitely ring alarm bells.

I understand you have describe the place and be told that is was ok, but in light of many cases here where people have been wrongly advised that the so called knowledgeable people, yet who discovered it wasn't an excuse to avoid repayment, I would definitely double check. After all, the reason why DLA is not paid after a certain stay in hospital is because it is considered that their care and mobility needs are covered by the NHS. The same principle would seem to apply with the care your daughter is receiving.

Ettenna

Thank you. It wouldn't surprise me at all if she doesn't receive it. I said to the lady on the phone that the worst they could do is say no to her getting it. I only asked them because it says on the letter that she may be entitled to receive just the mobility part.

shirlgirl2004

My relative is in a care home that gives nursing and neuro rehab. It has 2 qualified nurses on duty at all times in each unit of 16 people. My relative had a trachae when he went in, is PEG fed, has low awareness and is unable to move at all. TBH he sounds in a very similar state to your DD bar the age because he is 40. He too is fully NHS funded. It is unlikely that your DD is classed as rehab because she isn't showing signs of awareness. My relative was in a very large rehab centre even though he isn't fit for rehab. TBH I can't help but hope your DD isn't in the same one my relative was in because it was horrendous. :sad:

On the other hand I can recommend the Wolfson Brain Imaging Centre in Addenbrookes hospital because they managed to ascertain he probably does have awareness despite outward appearances. He went as part of their research project.

And yes he only gets the mobility part because obviously the care home provide all the care.

shirlgirl2004

sunnyone wrote: »

When a WAV isnt fully crash tested it affects everyone travelling in the vehicle and not just the wheelchair user, I did lots of reasearch before deciding which one to buy and I bought a Paravan which is a German Chrysler Grand Voyager conversion (and most of the information on line is in German) and I love it.

For what you are proposing a WAV taxi might be best bet but only after researching what is available locally so that you can make sure that they understand you require the taxi for a wheelchair user and that the wheelchair needs securing safely (basic I know but with my experiances.......)

A WAV taxi isn't really an option for what we are looking to do. I can see that a flying wheelchair would be a hazard for all occupants though.

nannytone_2

just to ask a related question ....
my fatger ib kaw went into hospital 9 weeks ago. after 4 weeks i informed DLA and his benefit was suspended.
yesterday he was sent to a nursing home for 'end of life' care. he will be fully funded.

but being the age he is (84), he is very savvy with regards to money.
i know he cant receive the care componant of DLA now, but should he have his mobility componant reinstated?