atos?? need help

Mojisola

bubblegum1985 wrote: »

Have you seen a specialist for a diagnosis or was it your GP?

We've never had a specialist in this area. My GP diagnosed ME and then I was left to get on with things myself.

I've seen a doctor privately and have helped to set up a local NHS clinic but I'm doing everything they teach people so it hasn't been of any help to me personally.

Torry_Quine

Mojisola wrote: »

What specialists? I'd be interested in hearing about any NHS ME specialists - there's none around here.

Mojisola wrote: »

As I thought - no specialists/doctors/consultants.

None here either.

bubblegum1985

I'm following the advice to the letter and I'm still getting really fluctuating symptoms.

Have you joined action for ME? I find they are a good source of information, the website is excellent and I like the quarterly magazines.

ME is such a tough illness I'm still struggling to work out how the nhs has abandoned so Many people for so long....

Mojisola

bubblegum1985 wrote: »

I'm following the advice to the letter and I'm still getting really fluctuating symptoms.

Have you joined action for ME? I find they are a good source of information, the website is excellent and I like the quarterly magazines.

ME is such a tough illness I'm still struggling to work out how the nhs has abandoned so Many people for so long....

I've lived with ME for thirty years and have other family members who also have it and have helped run the local support group for many years.

The NHS has still to take ME seriously as a physical disease. There was a lot of harm done in the early years in the USA when the insurance companies tried to get ME classified as mental illness because that reduced their liability. In this country, Simon Wessely has spent years trying to explain ME away as a psychiatric illness and has managed to get lots of research money that would have been better spent looking at the physical changes in the body and finding a cure for them.