fibromyalgia & hypermobility help please?

nixe

hi, i have the hyper but it dont cause me to many problems
only now i am getting older can feel it more.
but daughter if she bangs her shoulder say then it will come out of the socket, she has to force it back in.
but rhummy said if it had been known earlier then she could have trained as a gymnatist. [ spell] daughter has physio now and its a big help to her she is now 25. i am now worried her daughter has it she is 2. but now we know what to look for the baby will get so much help. good luck hun and let us know how you get on. try not worry
your little one could be like me and not have many symptons of it. xx

Horseunderwater

My daughter has HMS in her shoulders hips and ankles and now does physio to strengthen the smaller inner muscles and this has helped her a lot. She does not have it too bad, but if it is genetic as others have said I am wondering how she got it - I recall having a clicky arm bone in my writing arm way back, but that stopped a while back and I know I had a maternal Aunt who could bend her fingers back on themselves, so maybe she has it because it is on my side of the family? Hers seemed to come on when she used one of those one strap rucksacks in primary school and it was not until she went to her last school that we finally managed to get her GP to refer her. Her shoulder will pop out, but since the physio started it has stopped doing that. Hopefully she can build up her muscle strength and get herself almost better.

crazy_girl

Hi everyone, It's been a long while due to me having to go back on the waiting list after the consultant rheumatologist was ill but she diagnosed me as having fibromyalgia. She's referred me for physio and x-rayed my hands and chest as this is where I've been having a lot of pain to see if I have arthritis in those areas. Thanks for all the advice and support.

mazza111

Hi Crazy girl. Sorry I missed your original post.

Fibro often goes hand in hand with HMS. Which they do believe is the same thing as EDS Hypermobility type 3. And if you have problems in the joint there's definitely a chance that you could have HMS.

Unfortunately it's still a very underdiagnosed condition. But if you visit the HMSA website as Cara advised, they have a full page on diagnosis. As well as loads of advice I honestly wonder how my daughter would have coped without the advice and support of the HMSA. They really are brilliant.

Physio has helped me, but leaving me with a sore butt!! So go easy at first and only do what you are able to do, an understanding physio is worth their weight in gold Hope you find it helps you.

crazy_girl

Thank you Mazza, I will have a look