We’d like to remind Forumites to please avoid political debate on the Forum.
This is to keep it a safe and useful space for MoneySaving discussions. Threads that are – or become – political in nature may be removed in line with the Forum’s rules. Thank you for your understanding.
📨 Have you signed up to the Forum's new Email Digest yet? Get a selection of trending threads sent straight to your inbox daily, weekly or monthly!
The Forum now has a brand new text editor, adding a bunch of handy features to use when creating posts. Read more in our how-to guide
Care At Home - Advice Please
lessonlearned
Posts: 13,337 Forumite
I am asking you kind peeps if you can help me with any tips and advice.
A bit of background.
My husband has Cerebellar Ataxia, a degenerative neurological condition. I cared for him at home until last December, with the help of a care package provided by our local authority. We were under the DisabilityDirect scheme and we used a combination of external agencies and also employed his own personal assistants.
This worked well for some time but then, as his condition worsened, I put my back out twice within a week and after taking medical advice I reluctantly agreed that he should go into care.
9 months later and I am really not happy with the situation and I know he would love to come home.
His condition continues to deteriorate and he now needs two person handling with a hoist and is completely dependent on carers for all his needs. I believe he comes under the category of what agencies call "Complex Care'.
The local authority currently fund his care at the nursing home and I understand that there is a nursing component in the funding package.
I am currently looking at moving to a bungalow because even with adaptations our current home is still not really suitable. I believe it would be easier just to move house and find somewhere with better access, no narrow corridors etc.
I have to confess I find the whole process of dealing with the powers that be bewildering and exhausting - getting the right information at the right time is well-nigh impossible because each department you deal with seems to tell you something different.
Sorry this has been such a long post but I thought it would help if I gave you some background detail.
I am going to request a meeting with his old care manager as a first step to discuss what help is available, especially financial.
I have also looked on the net and have been reading up about using an agency to provide Live In care. However I'm not sure if we can afford this.
So if any of you can offer any advice or tips or can help point me in the right direction I would be extremely grateful.
Thanking you in advance.
A bit of background.
My husband has Cerebellar Ataxia, a degenerative neurological condition. I cared for him at home until last December, with the help of a care package provided by our local authority. We were under the DisabilityDirect scheme and we used a combination of external agencies and also employed his own personal assistants.
This worked well for some time but then, as his condition worsened, I put my back out twice within a week and after taking medical advice I reluctantly agreed that he should go into care.
9 months later and I am really not happy with the situation and I know he would love to come home.
His condition continues to deteriorate and he now needs two person handling with a hoist and is completely dependent on carers for all his needs. I believe he comes under the category of what agencies call "Complex Care'.
The local authority currently fund his care at the nursing home and I understand that there is a nursing component in the funding package.
I am currently looking at moving to a bungalow because even with adaptations our current home is still not really suitable. I believe it would be easier just to move house and find somewhere with better access, no narrow corridors etc.
I have to confess I find the whole process of dealing with the powers that be bewildering and exhausting - getting the right information at the right time is well-nigh impossible because each department you deal with seems to tell you something different.
Sorry this has been such a long post but I thought it would help if I gave you some background detail.
I am going to request a meeting with his old care manager as a first step to discuss what help is available, especially financial.
I have also looked on the net and have been reading up about using an agency to provide Live In care. However I'm not sure if we can afford this.
So if any of you can offer any advice or tips or can help point me in the right direction I would be extremely grateful.
Thanking you in advance.
0
This discussion has been closed.
Confirm your email address to Create Threads and Reply
Categories
- All Categories
- 353.8K Banking & Borrowing
- 254.3K Reduce Debt & Boost Income
- 455.2K Spending & Discounts
- 246.9K Work, Benefits & Business
- 603.4K Mortgages, Homes & Bills
- 178.2K Life & Family
- 261K Travel & Transport
- 1.5M Hobbies & Leisure
- 16K Discuss & Feedback
- 37.7K Read-Only Boards