Has anyone heard of testing for Kryptopyrrole or Pyrrole levels?

mrs_sparrow

I was wondering if anyone in the UK had heard of anyone being tested for this.

My friend in has been tested for it and her, and her children have high levels, so they have been prescribed Zinc and B6 but with some googling I see that people with personality disorders as well as Autism and ADHD should be tested for it as the supplements can make a lot of difference.

I always read these things with one eyebrow raised but if it is as good as they reckon it is then why have I not been offered anything like this to help my son as it is, apparently, only a urine test to check the levels?

Thought I would ask here. Thanks.

ETA: http://www.kryptopyrrole.com/ Is the link I found through googling.

DVardysShadow

Zinc and vitamin B6 are found in common foods. So you could google to find what those are and just check to see whether your diet is deficient, quite aside from the urine test.

Gingernutty

Wiki's unimpressed

DVardysShadow

Gingernutty wrote: »

Wiki's unimpressed

???? Pyrrole and kryptopyrrole in urine are merely claimed as indicators of a condition. There is no therapeutic claim being made. So I would not expect to see Wiki say much about this.

mrs_sparrow

DVardysShadow wrote: »

Zinc and vitamin B6 are found in common foods. So you could google to find what those are and just check to see whether your diet is deficient, quite aside from the urine test.

My friend told me that usual readings are under 10 but hers and her daughters were 100 which is too much for it to be a food deficiency, isn't it?

However, at the £3 a day charge for the capsules she has to take (that is just for her, not for the kids yet) I am wondering, well, you know.......

**Patty**

The percentages are meaningless as it doesn't tell you how big the test group was.

Probably the US is done beating us over the head with the Son-Rise program & this is the latest bee in it's bonnet.

DVardysShadow

mrs_sparrow wrote: »

My friend told me that usual readings are under 10 but hers and her daughters were 100 which is too much for it to be a food deficiency, isn't it?

However, at the £3 a day charge for the capsules she has to take (that is just for her, not for the kids yet) I am wondering, well, you know.......

Can't give medical advice on this forum so beware where you take this discussion - the thread may be pulled.

I am not suggesting that your friend's condition is a food deficiency one way or the other. But it makes sense to me that as the kryptopyrrole is an indicator which appears when there is a deficiency, small changes in the level of nutrients can result in large changes in the level of an indicator.

What I was really getting at however is because zinc and B6 are prescribed, you could review your family diet to check that you are not excluding foods which contain them. Within the constraints of a normal diet, to avoid giving medical advice.

mrs_sparrow

Ah yes, I see what you mean. I wasn't looking for medical advice at all, just whether there was some sort of scam going on here.

I've looked at the % you need to eat each day and I am confident all of us get the right amount - however, if what she said is true about Pyrrole it would not make a difference anyway.

Honestly, I have Googled and can find hardly anything except testing by private clinics offering 'natural' health care. I have found that it is called Pyroluria here in the UK, however it is mainly 'diagnosed' by companies offering natural healthcare remedies.

The pages say that is is a chemical imbalance that causes behaviour and mental health problems such as schizophrenia, ASD and ADHD - and that half of kids with ASD have an unknown Pyrrole disorder. The NHS website do not even recognise Pyrrole or Pyroluria and surely if it was that easy to diagnose and treat, they would?

I don't think this is a medical question, more is it a scam to get money out of people?

mrs_sparrow

**Patty** wrote: »

The percentages are meaningless as it doesn't tell you how big the test group was.

Probably the US is done beating us over the head with the Son-Rise program & this is the latest bee in it's bonnet.

I honestly have never heard of this and just googled it.

OMG - 'recovering from autism'? Just - OMG :eek::eek:

DVardysShadow

mrs_sparrow wrote: »

The NHS website do not even recognise Pyrrole or Pyroluria and surely if it was that easy to diagnose and treat, they would?

I don't think this is a medical question, more is it a scam to get money out of people?

A lot of medicine is driven by Pharmaceutical companies. If the cure is known to be common salt, then there may be no source of funding to understand the condition further. So something like this will be left to fringe outfits. That is not to say one way or the other whether the idea is a scam. But if the idea has been around for a while, you might expect to find scam denunciations plastered across the internet if it is actually harmful.

System

half of kids with ASD have an unknown Pyrrole disorder

If it is unknown then how do they know.

Is this another case of taking a small sample and then extrapolating to the whole population?