Can my fiancee get dla?

hunnisbunnis

pinkmum2010 wrote: »

he has been diagnosed with hemiphlegic migranes which is pretty rare and he's already on his 2nd coctail of pills which still appear to be doing nothing. even thoughhe has just been diagnosed he will have had this condition for years but it's just peaked recently and left hime a shell of his former self, i also think he's very depressd

Hi pinkmum2010
i sympathise with your partner as i too have hemiplegic migraine, which side of his body is it affecting most? how often does he have them

its easy to get depressssed with this i do alot, its affects my left side majority of time and happens to me up to once a day but the auras are worst as cant think striaght i get the confusion and can wander and so when things are bad i need someone to stay with me and help care for me as i get confused, wander and cant use one side of body so more likely to fall over nd injure myself, im also unable to use cooker or make food as i cant manahe one handed so need help with that

any questions pm me and il try and help as this is one of conditions which is rare but esa form is covered in details about it affects me

im sorry to hear your partner has this condition and hes 32, im 36 and its hard but this condition mainly starts in teenage years but now has peaked and been diagnosed fo both of us

hunnis

[Deleted User]

pinkmum2010 wrote: »

ok, what benefits are avialable to him if he cannot work, i've no idea we've both been fortunate emough to be healthy enough to work for the last 18 years and we have a mortgage, 2 kids and a wedding 4 weeks away. very worrying times financially

then you should both stop stressing and take a chill pill,i had my first stroke in my 30`s took 6 weeks off work and was ok,it was the second stroke 4 months later that led to all my current problems,my attitude now is live for today

pinkmum2010

alomost 2 months on wedding has long gone, no work related stress as he is still signed of work and no major improvements to his condition, it's very sad seeing your husband in pain then worn out for days after an attack. Still waiting to see a neurologist and on about 5th different combination of pills. will he get any better?

Peggybabcot

Hi pinkmum I too have hemiplegic migraine and also receive HRC & HRM. my attacks are daily and can last all day too and at their worst both sides are affected and I can't move from my eyebrows to my toes, I can't speak either. One thing I found was that the DLA forms weren't really geared to a condition with such a diverse and fluctuating range of symptoms. When I applied I also sent in a detailed copy of my diary as well as a covering letter explaining how severe and debilitating HM can be. I also sent in a video my husband took of me during a HM attack. This I think was the best thing I could have done as its quite likely that even a GP hasn't ever seen a HM attack. Also point out the aftermath so things like lack of coordination, memory loss, chronic fatigue, severe muscle aches and weakness. In my claim I told them of a situation that arose one night when our fire alarm went off (falsely thank goodness but I didn't know that at the time) It woke me up but I was having a HM so was paralysed and couldn't speak, our children slept through it but thankfully my husband was at home and realised it was indeed a false alarm. If it had been a real fire and I didn't have a carer I would have been in serious danger and so too would my children. Someone with HM is just as vulnerable as someone who is permanently paralysed as the paralysis can strike at any time with limited warning. I have been in receipt of DLA for about 7 years now (6 months after they started) and during that time I have had to appeal once but won it and had my claim increased to max mobility & care but not without a fight so be warned! As far as HM is concerned finding a neuro who's familiar with it is the first hurdle and finding the triggers is the second. I wish your husband well and if you feel like a chat feel free to PM, Julie x

Katieboo87

I too have HM! I didn't know there were so many of us.

I'm on my own now having just separated from my husband and am thinking that if I can claim DLA I should as it would top up my income for days I cannot work.

Mine come in clusters - I can go two weeks without a HM attack but then can have two weeks of solid HM.

I lose stength in my left side, get very confused, I can talk but it's almost as though I am very drunk and I just slur my words, I lose around 50% vision in my left eye and can't pick anything up with my left hand.

I do look after myself and my daughter, because I have nobody else now. Is it worth applying or is it only if you need caring for? I mean I probably do I just don't have anybody to do it.

For me, the benefit would mean I wouldn't need to worry so much about money. I only get SSP when I'm off sick which doesn't pay the bills.

I work full-time, can you apply for DLA and work full-time?

Any help greatly appreciated.

SuzieSue

Katieboo87 wrote: »

I too have HM! I didn't know there were so many of us.

I'm on my own now having just separated from my husband and am thinking that if I can claim DLA I should as it would top up my income for days I cannot work.

Mine come in clusters - I can go two weeks without a HM attack but then can have two weeks of solid HM.

I lose stength in my left side, get very confused, I can talk but it's almost as though I am very drunk and I just slur my words, I lose around 50% vision in my left eye and can't pick anything up with my left hand.

I do look after myself and my daughter, because I have nobody else now. Is it worth applying or is it only if you need caring for? I mean I probably do I just don't have anybody to do it.

For me, the benefit would mean I wouldn't need to worry so much about money. I only get SSP when I'm off sick which doesn't pay the bills.

I work full-time, can you apply for DLA and work full-time?

Any help greatly appreciated.

Yes, definitely apply for it. Remember to describe your symptoms on your worst days. Many people receive DLA when they are working full time.

rogerblack

SuzieSue wrote: »

Yes, definitely apply for it. Remember to describe your symptoms on your worst days. Many people receive DLA when they are working full time.

Describing symptoms only on bad days is benefit fraud, and will in the worst case lead to a criminal conviction, with the possibility of imprisonment, and forced sale of assets, including your home to repay any incorrectly paid benefit.

Katieboo87

Can't I just provide the letters from my neurologist who I have been seeing for 2 years which themselves decribe the condition, it's affects and states that I am 'significantly disabled'? I don't plan to commit any fraud!

SuzieSue

rogerblack wrote: »

Describing symptoms only on bad days is benefit fraud, and will in the worst case lead to a criminal conviction, with the possibility of imprisonment, and forced sale of assets, including your home to repay any incorrectly paid benefit.

Where did I say only on your worst days???

SuzieSue

Katieboo87 wrote: »

Can't I just provide the letters from my neurologist who I have been seeing for 2 years which themselves decribe the condition, it's affects and states that I am 'significantly disabled'? I don't plan to commit any fraud!

Don't worry about fraud. As long as you are honest, there is no problem. You have to fill in a form and if they ask for supporting documents then you can provide the letters from your neurologist.