Cfs

rogerblack

Anubis wrote: »

It can be difficult also to get DLA on a diagnosis of CFS alone (easier with ME as it tends to be more debilitating.)

Can you cite any reference on this?
All DWP documents I've seen refer to the two conditions synonymously.

Torry_Quine

rogerblack wrote: »

Can you cite any reference on this?
All DWP documents I've seen refer to the two conditions synonymously.

That's how I've thought of it. The medical profession will on the whole say that CFS is the more correct and accurate name for what patient groups use the name ME. I agree that CFS is a catch-all term and don't use it myself but recognise that unfortunately agencies such as health services etc do. :mad:

Anubis_2

Torry_Quine wrote: »

That's how I've thought of it. The medical profession will on the whole say that CFS is the more correct and accurate name for what patient groups use the name ME. I agree that CFS is a catch-all term and don't use it myself but recognise that unfortunately agencies such as health services etc do. :mad:

And that is the issue right there.

All DWP documents I've seen refer to the two conditions synonymously

The DWP state that there is some difference of opinion over whether ME is different from CFS; however, most authorities refer to the condition as CFS/ME.

As DLA is for care needs, and ME tends to be more debilitating, and therefore leading to more care needs, it would be judged on that (which is what I meant sorry.)

Not underestimating those who suffer with CFS as a primary condition, but ME sufferers *may* need a wheelchair more often (and often do), whereas CFS *appears* more manageable in that crutches are used to get around until tiredness/aching hits more often.

Lum

Where does Fibro fit into that? My partner's ME specialist thinks that ME and Fibro are the same thing.

Torry_Quine

Lum wrote: »

Where does Fibro fit into that? My partner's ME specialist thinks that ME and Fibro are the same thing.

There's certainly a lot of crossover between the two. The main deciding difference is that FMS has tender points. At least he has a specialist, none anywhere here. :mad:

Anubis_2

Lum wrote: »

Where does Fibro fit into that? My partner's ME specialist thinks that ME and Fibro are the same thing.

Fibro and ME are not really the same conditions, but under the same umbrella, and have overlapping symptoms as does FMS, Lupus, MS, etc

I fully expect at some stage once more research has been done for FMS, CFS and ME to be counterparts of one another and listed as ONE condition and then sub- headed much like MS is (as in PPMS, SPMS, RRMS, etc)

Anubis_2

Torry_Quine wrote: »

There's certainly a lot of crossover between the two. The main deciding difference is that FMS has tender points. At least he has a specialist, none anywhere here. :mad:

Torry, is there no rheumy specialist in your area?

Torry_Quine

Anubis wrote: »

Fibro and ME are not really the same conditions, but under the same umbrella, and have overlapping symptoms as does FMS, Lupus, MS, etc

I fully expect at some stage once more research has been done for FMS, CFS and ME to be counterparts of one another and listed as ONE condition and then sub- headed much like MS is (as in PPMS, SPMS, RRMS, etc)

I think that as well. I know someone with FMS and the symptoms are scarily similar to ME. I thought though that FMS is fibroyalgia syndrome ie fibro?

Anubis wrote: »

Torry, is there no rheumy specialist in your area?

Yes but I have been diagnosed with ME.

Anubis_2

Torry_Quine wrote: »

I think that as well. I know someone with FMS and the symptoms are scarily similar to ME. I thought though that FMS is fibroyalgia syndrome ie fibro?

Yes but I have been diagnosed with ME.

FMS is fibro (fibromyalgia syndrome)

Why are you unhappy with your ME diagnosis? Do you feel it is something else?

Torry_Quine

Anubis wrote: »

FMS is fibro (fibromyalgia syndrome)

Why are you unhappy with your ME diagnosis? Do you feel it is something else?

I thought so but some have talked of fibro and FMS so confused me.

I'm not unhappy with my diagnosis, just meant that as I have ME the fact that there are rheumatologists doesn't help me.