My father has been diagnosed with pulmonary fibrosis. I'm after some advice.

thatsmyusername

PFFCourtney wrote: »

Your post came across a Google alert and I wanted to reach out to you to let you know about the Pulmonary Fibrosis Foundation. Many patients and families feel overwhelmed and confused when they are first diagnosed with pulmonary fibrosis and as a foundation, we want to be able to offer support and information to you and your family. Please feel free to contact me with any questions or concerns you may have. I would also be glad to send you our Patient Information Packet.

Best,

Courtney Firak
Support Services Coordinator
cfirak@pulmonaryfibrosis.org

Thank you. I have sent you an email.

Dunroamin wrote: »

Assuming he's given an oxygen concentrator you can receive an allowance towards the extra electricity costs involved but make sure that he's also provided with ambulatory oxygen or he'll be stuck indoors, possibly for years.

His oxygen was due to be delivered today but they couldn't get it out until tomorrow at the earliest so I'm not sure what is what etc.

He has a UK coach holiday booked for 5 weeks time, I don't know if he can go on this holiday. I asked at the hospital today and they just weren't sure at this stage.