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Charities board update
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Duchenne Now
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Hi, my sister and I are fundraising for Duchenne Now, charity number 1146355, this is taken from the website: We are dedicated to treating everyone with Duchenne and will only fund projects with a clear road map to market within a reasonable time frame, we need to start treating people living with duchenne now. We are convinced this can be achieved, together we can make viable treatments a reality for all. PLEASE can you spare you a few minutes of your time to sign this online petition: http://epetitions.direct.gov.uk/petitions/14427 and make yourself aware of this heartbreaking, terminal condition xx Thanks in advance xx
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http://www.youtube.com/watch?v=yoKPBJhDONc&feature=share take a look at the video one of the parents has put together, please watch & share x0
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