MSE News: Half a million could lose disability benefits

sunnyone

nannytone wrote: »

im sorry of i have come across as saying pain isnt an issue.
i cant imagine what it must be kije to live wuth pain. and vertaonly it is dibilitating.
im just saying that from the DWP's perspective, pain is everything.
these reforms are so devisive, and are probably designed that way.
physical pain must be awful ... but that isnt the total measure of disability

I dont think pain is everything for the DWP. you know my multipul disabilities, my husbands disabilities are totally diffrent from mine but he is still disabled.

It isnt pain that stops me walking but lack of function, the same with many of my other problems, its lack of function that describes my sensory disabiliy too.

Being in pain is terrible, Im on shed loads of meds for pain and they do help a bit but meds can do nothing to help my disabilities which result from loss of function.

I hope Im not describing things in a way that upsets you, lack of function seems to describe many of my disabilities, im not asscribing it to everyone else

dori2o

sunnyone wrote: »

You have a choice, you dont have to walk at all though from my experiance the pain from CRPS certainly dosnt go away once you cant weight bare/walk at all so if the increase in pain is bearable you should try and stay on your feet as long as possible because it allows you so much more freedom when compared to being stuck in a wheelchair.

They cant even cut the damaged nerves to make life easier, it can make the pain worse according to my Neuro.

Disability isnt all about pain but pain can certainly make you disabled, especially conditions like CRPS where the pain isnt "normal" pain.

But I certainly dont think discomfort can cause disability.

Then you are wrong.

sunnyone

dori2o wrote: »

Then you are wrong.

I suffer from discomfort all day, every day, I cant even sit up unsupported ATM so even my profilling bed cant offer the support I need to be comfortable but the discomfort is bareable, chronic, insufferable pain is a totally diffrent thing especially pain which is very difficult to treat.

dktreesea

The government, based on its actions so far, don't seem to want to pay any extra at all to the disabled person, regardless of the nature of their disability. They are both restricting the numbers funded via income support and the eligibility of people for other disability related components. The vast number of people being transferred onto work related benefits, or at least benefits which have some conditionality around being available for work, like ESA, bear this out.

Instead of wasting money on ATOS and making the disabled jump through hoops, maybe they should bite the bullet, risk not getting in at the next election and introduce a one size fits all benefit.

dori2o

dktreesea wrote: »

The government, based on its actions so far, don't seem to want to pay any extra at all to the disabled person, regardless of the nature of their disability. They are both restricting the numbers funded via income support and the eligibility of people for other disability related components. The vast number of people being transferred onto work related benefits, or at least benefits which have some conditionality around being available for work, like ESA, bear this out.

Instead of wasting money on ATOS and making the disabled jump through hoops, maybe they should bite the bullet, risk not getting in at the next election and introduce a one size fits all benefit.

It would be far beter to scrap the benefits in exchange for providing services/therapies/medications which actually benefit disabled/sick people.

I pay for acupuncture, reflexology, massages and a charity is due to start funding counselling sessions for me, all because I cannot get these on the NHS.

The US and other countries in Europe have embraced the medical benefits of Cannabinoids, this country still refuses to accept them and so I am forced to break the law in order to find an acceptable amount of pain relief.

More and more services are being cut back that could offer some people respite from pain or help regaining mobility.

This country is 20 years behind when it comes to medical advancements and it's about time we got onto an equal footing.

Giving disabled people more rights to work from home rather than be forced to travel to work, which in most cases is the biggest stumbling block to gaining/sustaining employment.

Unfortunately the Government and most worryingly a growing number of people would prefer to demonise the sick and disabled rather than help them, placing the blame for the current financial state of the country squarely at their feet.

dktreesea

NHS trusts tend to think alternative medicine is mumbo jumbo, but they don't even properly fund more conventional treatments, like physiotherapy and pain management clinics. Three months of physio once a fortnight isn't going to fix a lot. Some people need months of physio, yet get told, three months into their treatment, that this is all the funding allows for.

People should be getting the treatment they need, individually tailored to their needs, not some one size fits all minimalist care that the NHS seems to represnt these days. No wonder people who have physical mobility challenges don't get back to work; they don't get sufficient treatment.

It's the same with people who need prosthetic limbs. Bionic limbs exist, but instead people have to make do with strap on limbs that are next to useless because the particular NHS trust say they can't afford treatment that would probably be a minimal level of treatment in most northern European countries.

nannytone_2

sunnyone wrote: »

I dont think pain is everything for the DWP. you know my multipul disabilities, my husbands disabilities are totally diffrent from mine but he is still disabled.

It isnt pain that stops me walking but lack of function, the same with many of my other problems, its lack of function that describes my sensory disabiliy too.

Being in pain is terrible, Im on shed loads of meds for pain and they do help a bit but meds can do nothing to help my disabilities which result from loss of function.

I hope Im not describing things in a way that upsets you, lack of function seems to describe many of my disabilities, im not asscribing it to everyone else

i suppose that we're all different.
it pee's me off no end that i can't just get up in the morning and go wherever i want, without pre planning, and the fact that i cant even read my own letters is difficult. i have to let someone else read my correspondance... no matter how personal.
but i accept that is just how life is for me. i really couldnt bear to be in constant pain.
if i was told tomorrow that i could get my sight back, but it would mean constant pain ... then i'd rather stay as i am

danielanthony

In most Northern European countries they don't have the NHS we have here and better healthcare is funded by insurance paid for out of your salary. If you don't work for whatever reason then you get state funded treatment which isn't as good as you get in this country for 'free'.

Some people should be grateful for what they have as there isn't some healthcare utopia out there the disabled here are missing out on.

nannytone_2

i am very frateful that we receive the treatment we do, regardless of ability to pay.
but there is more than enough money going into the NHS to give everyone the treatment they need.
the waste is absolutely staggering.
thats what annoys me.

dktreesea

danielanthony wrote: »

In most Northern European countries they don't have the NHS we have here and better healthcare is funded by insurance paid for out of your salary. If you don't work for whatever reason then you get state funded treatment which isn't as good as you get in this country for 'free'.

Some people should be grateful for what they have as there isn't some healthcare utopia out there the disabled here are missing out on.

I guess you have to try the NHS for yourself, to see if the theory of great care matches the reality. It's very inconsistent care throughout Britain. Some countries have better services and care (Scotland) than others (England). Some NHS trusts fund medicines (Scotland) that aren't available in other countries (again, England).