Where do we stand?

gingergee

Me too, im only 29 lol. Fingers crossed you wont need to apply, but if she gets worse, she defo needs too. It can help pay towards therapys or things that help relax, in fact anything that makes life easier!!. I'd swap all the money in the world to go back to work. Im starting a degree in sep, got a lot of support in place ready.
If the time comes to apply, remember, focus on the effect ME has,not its symptoms, when filling the forms out. I think a lot of folk get denied it cos of this xx Good luck x

Mojisola

W1lf5ter wrote: »

[*]My partner has been diagnosed with ME
[*]She is currently working full time, but struggling to do so.
[*]She struggles getting around sometimes, though not always.

I wish we had her doctor! It's very unusual for someone who is still able to hold down a full-time job to get a diagnosis of ME. We've got people in our support group who are bed-bound and still have trouble getting a diagnosis.

Your partner really needs to make sure her condition doesn't deteriorate. Dr Myhill's book on managing ME can be downloaded for free - https://www.drmyhill.co.uk/wiki/CFS_-_CFS_Book_published_by_Dr_Sarah_Myhill - and her advice has helped many people with ME.

Setting up a limited company is very straightforward - you can buy a company "off the shelf".

You won't be able to claim any unemployment benefits as you have been self-employed and your partner's earnings are too high to get any means-tested benefits.

W1lf5ter

Luckily, being a physio for an NHS trust, she has had a lot of support, and to be fair, they have gone out of their way to make life easier for her.

gingergee

Mojisola wrote: »

I wish we had her doctor! It's very unusual for someone who is still able to hold down a full-time job to get a diagnosis of ME. We've got people in our support group who are bed-bound and still have trouble getting a diagnosis.

Your partner really needs to make sure her condition doesn't deteriorate. Dr Myhill's book on managing ME can be downloaded for free - www.drmyhill.co.uk/wiki/CFS_-_CFS_Book_published_by_Dr_Sarah_Myhill - and her advice has helped many people with ME.

Setting up a limited company is very straightforward - you can buy a company "off the shelf".

You won't be able to claim any unemployment benefits as you have been self-employed and your partner's earnings are too high to get any means-tested benefits.

Don't suppose you have any downloads for managing SLE do you? lol x i' spend about 90% of my time either in bed asleep or on sofa, in agony! x

Mojisola

gingergee wrote: »

Don't suppose you have any downloads for managing SLE do you? lol x i' spend about 90% of my time either in bed asleep or on sofa, in agony! x

Dr Myhill's advice about pacing, diet and supplements might help. She's got some stuff on inflammation that might help - https://www.drmyhill.co.uk/wiki/Inflammation

It must be awful to be in pain all the time.

gingergee

I wouldnt wish it on anyone. Only things that keep me going are my kids!!!
Thanks for link x
OP, hope you sort something soon xxx