Do you have Coeliacs disease?

24skins

Totally agree with Coeliacs receiving food on prescription, but I've known autistic children getting free bread etc via prescription when there's no evidence that going gf helps (or hurts) in autism. While I have no issue with parents trying whatever feels right I don't believe those children should get an experimental diet for free.

soolin

24skins wrote: »

Totally agree with Coeliacs receiving food on prescription, but I've known autistic children getting free bread etc via prescription when there's no evidence that going gf helps (or hurts) in autism. While I have no issue with parents trying whatever feels right I don't believe those children should get an experimental diet for free.

Unless they were diagnosed as coeliac the GP was in breach of the regs . Only biopsy diagnosed coeliacs are eligible- which causes another big row in the coeliac community as many refuse to be biopsied and are diagnosed merely on a blood test that is not accurate . So only if we agree to eat gluten for two weeks and then have a biopsy should we have the ability to get GF foods on prescription.

soolin

It is also worth remembering that not all PCTs will allow GPs to prescribe GF food to coeliacs so those of us who are able to get things on prescription are already the lucky ones.

24skins

soolin wrote: »

Unless they were diagnosed as coeliac the GP was in breach of the regs . Only biopsy diagnosed coeliacs are eligible- which causes another big row in the coeliac community as many refuse to be biopsied and are diagnosed merely on a blood test that is not accurate . So only if we agree to eat gluten for two weeks and then have a biopsy should we have the ability to get GF foods on prescription.

These children are not diagnosed Coeliacs, they are children whose parents have put them on the unproven GF/CF (gluten free/casein free) diet for autism. I've known three children in my local area who have had food meant for Coeliacs prescribed by sympathetic GP - it's something I strongly disagree with although I didn't realise it was against any rules.

soolin

24skins wrote: »

These children are not diagnosed Coeliacs, they are children whose parents have put them on the unproven GF/CF (gluten free/casein free) diet for autism. I've known three children in my local area who have had food meant for Coeliacs prescribed by sympathetic GP - it's something I strongly disagree with although I didn't realise it was against any rules.

It is the cause of endless arguments on the various coeliac groups.

Mojisola

soolin wrote: »

No, the last thing someone who has coeliac disease needs is a restrictve diet. Yes we are perfectly well if we stay gluten free, but we also have a lot of digestion and difficulties with absorbing certain vitamins and minerals (some but not all coeliacs) . I already have to have regular Vitamin B12 injections due to severe anemia and I am considered a very unsymptomatic coeliac. If i don't eat, or I miss out on carbs or protein I pass out or am very sick or at the least get a migraine as we are prone to a lot of blood sugar issues as well.

As I said I am considered to be a 'well' coeliac, I am even disliked on some informal CD groups as I do not conform to th enormal 'sick' coeliac ideal, I do not fall ill if I use a bread knife that has been used to cut real bread, nor do I suffer any reaction if I accidentally eat small quantities of gluten- although of course it affects me long term.

As long as I eat a varied diet, and don't cut out any food group I am very very well. Before good GF bread I used to eat a lot of kedgeree, pre cooked in the morning or night before work and then decanted into tupperware to be eaten cold at work.

The coeliac in my family is far more sensitive to gluten than you - she does get symptoms at the slightest exposure - and does very well on paleo.

It may not suit you but a paleo diet doesn't have to be restrictive. Most people who use a paleo diet eat a broader range of foods than those who rely on the standard wheat-based one.

No-one is saying everyone should start eating paleo but it's worth looking at different ways of eating if there are problems with the diet someone is on now, like the possible restriction in prescription gluten-free foods.

KxMx

If someone buys a 1 year PPC then the cost per week for medication is just £2.

koolkatsaffi

Signed!