Advice needed, desperate and at the end of my tether.

QuackQuackOops

Anubis wrote: »

Well yes and no. It can take many years to diagnose and is often misdiagnosed because of this. The reason is the positive ANA does not always show in patients, it has to be "caught" during the blood test at the right time. There are also false positives. It's a really awkward one to diagnose on some. However, it was just an idea

Correct but also just because the ANA is 'caught' also does not mean someone definitely has SLE.
It is so often misdiagnosed or missed completely.

Anubis_2

QuackQuackOops wrote: »

Correct but also just because the ANA is 'caught' also does not mean someone definitely has SLE.
It is so often misdiagnosed or missed completely.

Hence why I said there are also false positives

gingergee

I have SLE. Get my bloods done every 3 months to chaeck ANA and Anti-DNA, Also have APS. My levels actually increased last 2 tests. I Take loads of pills bit im NOT allowed ibuprofen. It affects my kidney, which SLE likes to attack. I have always bruised easliy, but never made the connection!! How odd!! Nasty diseases like SLE, ME, MS, HMS are the hardest to get diagnosed. I had a brilliant doctor who fought for me to get the tests, as they dont routinely test for them. Id defo try a different doctor. Don't give up!!! Im currently on diazipam and Amytriptoline to ease my current pain. (this month its decided to stop me walking, my hips and hurting, the connective tissue between my muscles and bones are swollen. FIGHT FIGHT FIGHT!!!XXXX Good luck xxxx

Corpsebride86

Sorry for the delay in getting back online, Had a hellish few days and atm it looks like im gonna be loosing my job

Thanks Anubis I will definitely explore that option! I am trying to get into the doctors tomorrow to see a different GP and I am going to push to see a rhumatologist as my orthopaedic doctor has not yet referred me back to the specialist hospital I was a patient at.


Thanks to everyone for their advice