Home care (not care home) funding for terminally ill person

bored_at_home

i am so sorry to read this. to lose someone is bad enough, but two so close together must be exceptionally tough.
im glad you got them both home. as i said before it was all my dad wanted, to be in his own house in his own bed, and i totally understand where he was coming from.
i found it a comfort that we were able to comply with his wishesaltho as also said before it was very very tiring emotionally as well as physically, and im hoping you will feel the same way x

Tiddlywinks

bored_at_home wrote: »

i .....it was all my dad wanted, to be in his own house in his own bed, and i totally understand where he was coming from.
i found it a comfort that we were able to comply with his wishesaltho as also said before it was very very tiring emotionally as well as physically, and im hoping you will feel the same way x

Again, I didn't realise this but if you have carers in then you have to get a fully compliant hospital type bed now - to prevent back injuries when turning etc. Perfectly understandable but it makes the move home less "homely" especially as these beds are so bloomin' big that you have to move all of the furniture around as well.

It was good for my folks to die at home even though it wasn't entirely the home they left when going to hospital but at least they could have some creature comforts like their own TV, choice of food, choice of mealtimes and unhealthy snacks etc rather than constant visits from nurses to check blood sugar, pressure etc (why? In their final days it would make no difference anyway really) and very long waits for bedpans and delays getting help when you actually need it.

So, it was hard - I need to say that as I went into it with my mum with a bit of an optimistic view of how I would manage and don't want others to make the same mistake - but, it was worth it.

Mum died in candlelight listening to her favourite music rather than in a sterile room with the clatter of dinner trolleys etc.