Long term illness

LadyMorticia

There's a forum called Foggy Friends which is a fantastic source of support for those with M.E. x

NEH

LadyMorticia wrote: »

There's a forum called Foggy Friends which is a fantastic source of support for those with M.E. x

Ahh I'd forgotten about that one, they did used to be good when I had ME....though having said that with the GP now swinging between fibro and ME and both maybe I should back to frequenting it!

LadyMorticia

NEH wrote: »

Ahh I'd forgotten about that one, they did used to be good when I had ME....though having said that with the GP now swinging between fibro and ME and both maybe I should back to frequenting it!

I know there are a couple of people on it who have Fibro as I know that M.E and Fibro symptoms can overlap.

I find it a great support. I'm also a member of AYME but that's for young people up to the age of 26. I'm almost 25 so only have a year and a bit left on that forum. x

liloandstitch

I dont know if it helps but I have ME and Fibro and was diagnosed 2 years ago. I receive contibution based ESA, on the return to work group. I need to have a look at this, because it is unlikely that I will ever return to work - and I will lose my payments next year under the current government proposals. I also receive DLA - middle rate care and lower rate mobility which I had to take to tribunal (took 2 years) but I won and got back pay. The CAB helped me, and were brilliant but I would warn you it was a terrible ordeal, and made me 1000% worse and I collapsed after the tribunal. I commence round 2 next year when it is due to renewal, but I will go back to the CAB for help as they were fab. I think I should get higher rate mobility as I had deteriorated since the original app, but they couldnt take that into consideration. If I can be of any help please feel free to pm me. Lilo

NEH

LadyMorticia wrote: »

I know there are a couple of people on it who have Fibro as I know that M.E and Fibro symptoms can overlap.

I find it a great support. I'm also a member of AYME but that's for young people up to the age of 26. I'm almost 25 so only have a year and a bit left on that forum. x

Well I had ME for a number of years, was then re diagnosed as having Fibro and then out of the blue my GP said a couple of months ago that it's probably a bit of both. My file says Fibro so I'm sticking with as that's was the Rhuemy told me.....:cool:

I'm too old myself for AYME now but they did used to be good, so did the Tymes Trust.....