Who will be accountable ?

t40

What really worries me as a muscle wasting desease (scrounger) is thus having been force fed a mass concoction of drugs mostly opium based for 10 yrs plus as the only management/care for my ils that have afforded me after medical assessment, several hospital stays and every single invasive test you can name several times over let alone endless walking pain related worries, clearly being aggravated by recent scaremongering such is who is going to use our NHS system after a few thousand cases like this are publicly flogged, branded liars, cheats and benefit scroungers let me explain....

The worry here is take me for over ten years I have been under care of the NHS and local health trusts for a semi unusual muscle wasting decease as I say above all tests were carried out when first diagnosed and treatment plan since has been heavy duty controlled painkillers (that I may add due to extensive use of the killer Oxycontin I may have a failing kidney/liver no to further contend with as the direct result) however I was diagnosed by at the time the two top Scottish professors in this field along with backing from my family GP and other health professionals so when as it seems we are all going to be forced to go through the indignity of being re-examined to assess our eligibility for said benefits NOT WITHSTANDING MY ENTITLEMENT IS FOR LIFE (clearly stated on the award notices) will we ever trust any hospital specialist ever again as clearly the government untrained staff carrying out theses reassessments must both know more and be better qualified to make these decisions than our top surgeons/specialists now seeing as this is a countrywide scathing attack on all sorts of sufferers I have to ask how many surgeons and specialists will not of carried out evidence work for DLA and like myself severe disablement benefit claimants which can surely onl lead down one road a total mistrust of our once great NHS service or could this be the real excersise here to make us distrust it not use it and for our great specialists to leave high-powered/high payed position in the first place but rather than sack them all use the most vulnerable in society to do it for them.

It will I trust they realise take but one of the aforementioned specialists to challenge the powers that be over their decision and they will be fighting a mass class action for deformation amongst other things wonder what that will end up costing central government and I promise when my time comes around as it apparently surely will it might just be me, as like many others I am going to want to know why I have been force fed drugs that have very likely damaged other organs to combat a decease then according to central government and the DWP etc I wouldn't have (presuming I am not regranted the benefits I am currently entitled to of course) which by what I'm reading here and elsewhere it looks highly likely that few ofw us will be regardless of conditions or effects on our life's day to day I certainly will not be one sitting down and taking it if more would realise that for everyone that is suffering with a justifiable desease that looses any benefits currently paid to them for it then it follows that you/I couldn't of ever had that desease that same one you/I have been treated for often for many many years, often with further damaging drugs and treatments someone has got to be accountable..

GlasweJen

The specialist is carrying out an assessment to make sure your care/mobility needs have stayed the same or that you are unable to carry out work related activities.

Their job is not to diagnose or to treat your condition.

I feel that any geniune benefit claimant wouldn't mind these checks (annoying as they are) because it will help to keep the money going to the genuine.

I do realise a lot of people have been put through hell being wrongly assessed but I think that sometimes it's difficult to work out where someone is going when they're filling out their forms. I mean I can't even tell from your rant if you're talking about ESA or PIP.

t40

Charming I wasn't aware is was having a rant, I prefer to believe I was making some valid points with regards to what will end up happening when the vast majority of our specialists professional opinion is constantly being refuted I worry that it's only a matter of time until we have a total lack of trust in the NHS .....

Whilst obviously I'm equally worried about my own situation I am in no doubt where if the day ever comes where I am forced to appeal I will go with this, I like most "genuine" cases that is with a genuine desease shouldn't have to be further stressed by inane testing by assessors who it's widely known have little or know knowledge in the desease and the likely outcomes of someone suffering from these deceases yet they are willing to put in doubt longstanding top of the tree professors and surgeons but worse still they are getting away with it.
The reason I did not specify over and above what benefits I am on was primarily due to not quite frankly knowing what I am on as far as my rundown recently I was on none of the ones you mention although I did notice that suddenly my severe disablement benefits are now being called invalidity benefit which is obviously another ploy as the remit for IB is very different.
I have no objection to being reassessed what I do have issue with is twofold first the unfair, unjust and seriously worrying manner in which they are being carried out, and secondly presuming that I fail the reassessment it will effectively mean I am not suffering with the debilitating desease that FIVE of Scotland's TOP specialists in the field at the time DON'T KNOW WHAT THEY ARE TALKING ABOUT any one with any brains would surely have to be worried by this so then surely the both destructive and addictive medication I and thousands like me have believed we had to take wasn't necessary so I ask again who will be responsible and answerable to for this

Richie-from-the-Boro

t40 wrote: »

~~~ snip ~~~

HiYa t40, you seem to be getting into trouble with each thread your posing in my friend, need a little help, let me know here. Best of luck

Parva

t40 wrote: »

What really worries me as a muscle wasting desease (scrounger) is thus having been force fed a mass concoction of drugs mostly opium based for 10 yrs plus as the only management/care for my ils that have afforded me after medical assessment, several hospital stays and every single invasive test you can name several times over let alone endless walking pain related worries, clearly being aggravated by recent scaremongering such is who is going to use our NHS system after a few thousand cases like this are publicly flogged, branded liars, cheats and benefit scroungers let me explain...

Could you try to condense the diatribe a little? The post goes on and on and I lost interest at line two. Explain the problem in easy terms.

bored_at_home

hi t40. you dont seem to be understanding what the asessments are for, firstky i wasnt aware they had performed any pip assesments yet, i thought they dont start til 2013 so wonder how you say they are being performed inproperly.
secondly,a lifetime award can be reassessed, and your diagnosis is absolutely nothing to do with assesment, the assesment has always been on care and mobility needs , not diagnosis.
i fail to see how this querry of who should be held accountable for anything.is connected with the dwp?
they are moving the boundaries a little on the criteria needed to retain the top level of benefit, and if you still quaklify then great, if you dont then its tough butyou lose money.
i know if the proposed criteria remains as is i will lose the high rate mobility award as under the new guidelines i wont qualify whereas before i did, but its just tough. it doesnt make anyone accountable for my disease

Invalidation

OK so what about those with degenerative disorders who were told they were 'Disabled for life' and thence made life changing decisions based on that assessment?

Thats not moving the goalposts, its demolishing the field !!

miduck

This thread is a year old ...