Charities board update
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Fund raising for MPS Society
jewels49_2
Posts: 23 Forumite
in Charities
My 14 year old grandson has MPS III (Sanfilippo) disease. This is a rare life limiting, genetic degenerative disease affecting 1 in 85,000 births. Children with Sanflilippo are missing a vital enzyme which is essential in cutting up and disposing of the mucopolysaccharides (chains of sugar) within the body, therefore the incompeteley broken down mucopolysaccharides remain stored in the body causing progressive damage to the brain, joint and organs. The constant build up eventually means that the child is unable to survive. Many children loose their lives to MPSIII (Sanflilippo) in their teenage years.
My daughter Fiona and I are holding a charity event in April 2012 to raise funds for MPS Society UK on his behalf,our good friend Tom is doing a sponsored back wax (ouch!!!) anyone who would like to support this worthwhile charity no matter how big or small can donate via justgiving.com/Elvis-Tribute every penny makes a difference.
Thank you for reading
Kind Regards
Chris x
My daughter Fiona and I are holding a charity event in April 2012 to raise funds for MPS Society UK on his behalf,our good friend Tom is doing a sponsored back wax (ouch!!!) anyone who would like to support this worthwhile charity no matter how big or small can donate via justgiving.com/Elvis-Tribute every penny makes a difference.
Thank you for reading
Kind Regards
Chris x
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