Plagiocephaly - Help us help our baby Max

emmab2001

http://www.justgiving.com/Babymaxsmith

Or text

MAXS99
£ amount

To 70070




I really hope you Can help us get to our goal!!

I will start the beginning! Our son Maxwell (Max) was born 22nd march 2011 4 weeks premature after a long and difficult pregnancy

He was admitted straight away to the special care baby units ICU department were he remained fighting for his breathing difficulties for 5 days before been transferred to the special care baby unit for a further 5 days he was then happily all in the clear and was allowed home to us and his 2 brothers Ethan aged 3 and Luke aged 2.

From birth max has suffered with reflux our health visitor and DR advised turning his head and keeping him raised up to help/stop him been stick luckily this reflux seems to be calming Down now he is on a special baby milk.

At around 5 weeks we started to notice a slight flattening of the right side of max's head we asked for this to be checked at his 6 week check and the DR dismissed our concerns just saying he had seem worse and give it time!

Since then despite repositioning and lots of tummy time max's head has become worse now even his right ear seems to have been pushed put of alinement

This situation is worrying us so much That after visiting Dr's max has now been diagnosed with severe plagiocephaly and brachycephaly which is a severe flattening to the skull the only option now after months of repositioning is the helmet treatment.

The helmet treatment involves using a scan of the babies head to construct a helmet which will be worn for 23 hours per day for 3 to 6 months this will realign the skull over time

The treatment is so expensive at approx £2000 but we are willing to do anything to help our baby.
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THE NHS WILL NOT PAY FOR THIS TREATMENT!
unfortunately we just don't have that sort of money and like most things it will take quite a while to save that amount and time is something we do not have max is at the optimum age for treatment and the younger he is the less time he should have to wear the helmet!

Our goal is to raise the £2000 for max's treatment we would ask anyone who would Like to help no matter what the amount really EVERY penny helps to donate to max's Justgiving page

please gift aid!!
we get additional funds from this thank you!

ALL donations go direct to headstart4babies the charity for children with these conditions the charity in turn will use the donations under max's name to pay his treatment bill any donations over our target amount will remain with headstart to help other families.

Please forward his page info to anyone and everyone you can by word of mouth or social networking

we have also designed some posters and will upload them soon if you have anywhere to display them!?

Thank you so much for your time I will keep this thread updated throughout all of max's treatment and will include pictures

for a little extra infomation and pixie dust the helmets are made in orlando!! by orthomerica!! maybe a bit of xtra florida magic!!!

Thank you all so much
Emma and simon And of course baby Max too

emmab2001