anyone successfully claimed DLA for migraine

GlasweJen

The faintings fun. My primary was neurocardiogenic syncope, then the hearing went and with it the balance. Pity there's no treatment either.

saidan

this thread is from may.......
niot sure if the OP is still asking this question

SingleSue

Trialia wrote: »

*nods* It can manifest in so many ways. For me it's pretty much postural orthostatic tachycardia. Watching my sugar and salt intake very carefully now; if I don't have enough of either, hi fainting. Heh.

My eldest has the same 'fun' with his levels due to POTS (also connected to his EDS), took a little explaining to his doctor before he would take it seriously though.

His 6th form have been very good though, they now allow him energy/fizzy drinks for exams as he was finding his levels going extremely low during them and pretty much passing out mid exam, probably due to stress and nervous energy.

Trialia

SingleSue wrote: »

My eldest has the same 'fun' with his levels due to POTS (also connected to his EDS), took a little explaining to his doctor before he would take it seriously though.

It usually does! I've been lucky, my present GP is just fantastic about the whole thing and all my problems that connect to EDS, which is most of them. POTS is one of the least fun, that's for sure.

Maybe we should just start a discussion thread for EDS and dysautonomia, since we seem to be taking over this one, lol!

GlasweJen

I have postural hypotension, stand up too fast and I topple. I do know someone with POTS and she went from being a bright and energetic entrepreneur to a nervous wreck in a wheelchair. She took the degeneration hard as it was a very quick transition from normal to unable to get out of bed.

Trialia

GlasweJen wrote: »

I have postural hypotension, stand up too fast and I topple. I do know someone with POTS and she went from being a bright and energetic entrepreneur to a nervous wreck in a wheelchair. She took the degeneration hard as it was a very quick transition from normal to unable to get out of bed.

*nods* Likewise. My POTS has been alarmingly quick to get worse - last night my legs just would not do what they were told. I could barely stand up, and had pins and needles all the way down, which is another feature. So much fun...not!

GlasweJen

At least we have understanding GPs. I avoid locums like the plague.

Zziggi

I have epilepsy and migraine. To be completely honest, my migraines are far more troublesome, debilitating and place a bigger restriction on my life than epilepsy yet claiming DLA for migraine is far more of an uphill struggle than for epilepsy. Similarly ESA accept the limitations epilepsy puts on you but not migraines. Seems v v unfair when referring to people with "proper" migraines rather than "bad headaches". Unless you suffer from migraines you really don't know how debilitating they can be. Good luck with your DLa application for migraines.

SingleSue

It was a locum who finally took me seriously about James' problems in the first place and referred us up to the big hospital where he finally got his EDS diagnosis...all the others kept palming me off with "it's growing pains", "He is a boy, they get into scrapes and hurt themselves" etc.

Mind you, I think James sitting there and just putting his shoulders out by shrugging may have convinced him a fair bit!