M.E Awareness Week

LadyMorticia

I made a leaflet in Photoshop for M.E Awareness Week. The original size is alot bigger so that the print quality would be good but I resized it for here.



ETA: Just noticed that "concentrating" is spelt wrong...oh the irony! :rotfl: Have managed to edit in Photoshop. I knew there was a reason I always saved as a PSD!

Trialia

Lady M - it's also Ehlers-Danlos syndrome and fibromyalgia awareness month. The purple ribbon's for ME, fibromyalgia, lupus and EDS.

LadyMorticia

Trialia wrote: »

Lady M - it's also Ehlers-Danlos syndrome and fibromyalgia awareness month. The purple ribbon's for ME, fibromyalgia, lupus and EDS.

Ooo okay. I didn't know that. I've been putting all my energy into M.E Awareness week that I forgot to see if there were any other awareness weeks/months going on.:o

I know what Fibromyalgia and Lupus are, but I'm not too clued up on Ehlers-Danlos syndrome. Please could you explain it to me? I've heard of it through here but I'm not sure how it affects its sufferers.

Trialia

LadyMorticia wrote: »

I know what Fibromyalgia and Lupus are, but I'm not too clued up on Ehlers-Danlos syndrome. Please could you explain it to me? I've heard of it through here but I'm not sure how it affects its sufferers.

I'm actually in the process of writing a post for a journalling event all about EDS, and I have it myself! Have you seen the link in the Crocks Cafe thread? That'll tell you a lot about it.

Chronic pain, fatigue and repetitive joint dislocations are the three major features, but there are a whole shedload of lesser ones, since EDS is a genetic collagen defect and collagen is a VERY common substance in the human body. Type 3, hypermobility, which is what I have, can have primary and secondary effects ranging from chronic dislocations and fibromyalgia right out to reactive depression, migraines, asthma, immunity to local anaesthesia, loose teeth, shortsightedness, scoliosis, early-onset osteoporosis... There are a LOT of symptoms involved, and it is degenerative and progressive, but type 3 can't kill you (type IV, vascular, can, however).

The length of time involved in finding a diagnosis for an EDS patient can be as long as 30-40 years. It took them 20 years to figure out I had it, and I'm only 25 now. My father and grandfather both had it, and it tends to get worse from parent to child. There is no cure, and very little treatment. About 1 in 5,000 people in Britain have some type of Ehlers-Danlos, which is perhaps about half the number of people who have SLE (lupus).

Does that help?

sunnyone

Trialia wrote: »

I'm actually in the process of writing a post for a journalling event all about EDS, and I have it myself! Have you seen the link in the Crocks Cafe thread? That'll tell you a lot about it.

Chronic pain, fatigue and repetitive joint dislocations are the three major features, but there are a whole shedload of lesser ones, since EDS is a genetic collagen defect and collagen is a VERY common substance in the human body. Type 3, hypermobility, which is what I have, can have primary and secondary effects ranging from chronic dislocations and fibromyalgia right out to reactive depression, migraines, asthma, immunity to local anaesthesia, loose teeth, shortsightedness, scoliosis, early-onset osteoporosis... There are a LOT of symptoms involved, and it is degenerative and progressive, but type 3 can't kill you (type IV, vascular, can, however).

The length of time involved in finding a diagnosis for an EDS patient can be as long as 30-40 years. It took them 20 years to figure out I had it, and I'm only 25 now. My father and grandfather both had it, and it tends to get worse from parent to child. There is no cure, and very little treatment. About 1 in 5,000 people in Britain have some type of Ehlers-Danlos, which is perhaps about half the number of people who have SLE (lupus).

Does that help?

I and because I had the DX my children were pretty lucky because I was diagnosed at 13, it was the same time as my scoliosis and wide spread joint pain was diagnosed and my kids are the same.

We dont know where it came from though but two of my siblings also have it.

Jojo_the_Tightfisted

And apparently Arthritis Care week as well. Do these people not know how to consult one another about diary clashes? Just like flaming consultants, no idea what the other ones are doing with you. [sighs pathetically]

LadyMorticia

Trialia wrote: »

I'm actually in the process of writing a post for a journalling event all about EDS, and I have it myself! Have you seen the link in the Crocks Cafe thread? That'll tell you a lot about it.

Chronic pain, fatigue and repetitive joint dislocations are the three major features, but there are a whole shedload of lesser ones, since EDS is a genetic collagen defect and collagen is a VERY common substance in the human body. Type 3, hypermobility, which is what I have, can have primary and secondary effects ranging from chronic dislocations and fibromyalgia right out to reactive depression, migraines, asthma, immunity to local anaesthesia, loose teeth, shortsightedness, scoliosis, early-onset osteoporosis... There are a LOT of symptoms involved, and it is degenerative and progressive, but type 3 can't kill you (type IV, vascular, can, however).

The length of time involved in finding a diagnosis for an EDS patient can be as long as 30-40 years. It took them 20 years to figure out I had it, and I'm only 25 now. My father and grandfather both had it, and it tends to get worse from parent to child. There is no cure, and very little treatment. About 1 in 5,000 people in Britain have some type of Ehlers-Danlos, which is perhaps about half the number of people who have SLE (lupus).

Does that help?

I haven't seen the link yet but I'll go have a look in a mo.

You've explained it very well. Thank you. Sounds like a dreadful condition to have.