House MD and misrepresentation

SingleSue

Eldest has pots (he has EDS) and the resultant lack of energy difficulty. He finds the use of high energy drinks get him through the school day and removes some of the brain fog he gets, just about enough for him to do his exams.

The difference is quite marked, for an exam he took without his energy drink, he got a low grade, same subject, retaken (because of the low mark), with the aid of the energy drink and he was no longer dropping off at the desk and brain fog cleared..his mark improved by 2 grades.

Without the caffeine, he is pretty much unable to even get out of bed in the morning and thinking is impossible.

Unfortunately, the energy drinks do not help with the heart problem he has.......but he takes the lesser of the two evils, be unable to move anywhere and basically not have a life and not need his beta blockers so much, or be able to move and have to take them a little more.

CFC

Olokia wrote: »

I will however mention it to Hugh Laurie that I didn't like the episode because they got it completely wrong. He is coming to my home town on the 2nd May to play at the jazz festival and there probably will be some signing thing after.

I'm sure he will be really worried.

Trialia

daska wrote: »

Bumped into a friend today to discover that after 2 years of being told that her son had depression, ME/CFS, POTS, and even that she was displacing her problems onto him... her son has a formal diagnosis of EDS. He's pushing 17 now and obviously behind in his education but hopefully, with the correct support, will be able to start catching up. He's seriously brainy, IQ off the scale, so I don't think he'll struggle once the energy problem is solved. Any recommendations as to the best internet sites, forums etc for either him or his mum?

I hang out at the Ehlers-Danlos Support Group and Hypermobility Syndrome Association forums; either may help. Also the article on EDS at Wikipedia is pretty good, as is what we call the "EDS bible" over at genetests.org, to search for.