help with childs dla please

angel9199

Hi everyone I have just started to fill in my childs dla, he will be three in a month and has been diagnosed with ASD and severe sppech delay. A lot of my son's are behavioural and I'm trying to give as much info as possible including examples.
My son would have about ten or more tantrums a day, lasting between 5-20 mins at a time, but I have been told not to use the word tantrum as it sounds like any child! So I have no idea what to write instead can anyone help me please.

I have a few other questions but my brian is just not working tonight:(

Thanks

Js_Other_Half

Have a read through this, it might offer some solutions.

http://www.cerebra.org.uk/parent_support/DLA_guide

Helen36

I had to fill in forms a while ago about a child with ASD who used to have major tantrums, and used to write about his 'episodes of intense physical and verbal agression where he cannot control himself or be controlled'. Don't know if this is the right sort of terminology, but may be a starting point. Good luck.

Helen

julie03

get cab to help you, they know alot more about what should be written, if you have a childrens centre near you they normally have an advisor

atlantis187

angel9199 wrote: »

Hi everyone I have just started to fill in my childs dla, he will be three in a month and has been diagnosed with ASD and severe sppech delay. A lot of my son's are behavioural and I'm trying to give as much info as possible including examples.
My son would have about ten or more tantrums a day, lasting between 5-20 mins at a time, but I have been told not to use the word tantrum as it sounds like any child! So I have no idea what to write instead can anyone help me please.

I have a few other questions but my brian is just not working tonight:(

Thanks

So sorry to hear about this. Would u be able to give me some advice please because i'm also really worried about my son who's nearly 3 and half and is not hardly talking at all and does have a few tantrums a day.

How do I go about getting him checked and what sort of procedures do they use to detmine if the child has ASD or not?

Thanks

julie03

atlantis187 wrote: »

So sorry to hear about this. Would u be able to give me some advice please because i'm also really worried about my son who's nearly 3 and half and is not hardly talking at all and does have a few tantrums a day.

How do I go about getting him checked and what sort of procedures do they use to detmine if the child has ASD or not?

Thanks

first port of call would be your gp, write down all that your son does before you go as its easier to remember.

toomuchinfo

My son has ASD and S+L disability so I know that the DLA forms are very daunting.
First of all I would say that your child has challenging behaviour rather than tantrums (tantrums are what NT/neuro typical children have, your son is disabled and is usually being challenging for other reasons)

I would recommend visiting the ASDFriendly site about filling in the forms etc
Google ASDfriendly.org and have a good look on the message boards, particularly the Making Life easier board.

Take your time filling out the forms, don't sugar coat things. Sometimes it's depressing to think of all the things our children can't do but it's important to tell things as they are.

asquiths_2

Good luck filling in the forms. I too have to fill them in for my daughter and they are a nightmare.

I was told by the cab to just try and think (write down) of every little thing that happens as quite often we forget how much we actually have to cope with as it becomes just a routine!

Oh and don't feel bad about how bad it looks when written down. At the end of the day the child has a disability that is largely the reason for the behavior.

xx asquiths xx

kerryallc71

this is a very good website .. ( parents of disabled children )

http://www.parentsofdisabledchildren.co.uk/

here is another - ( contact a family )

http://www.cafamily.org.uk/

also .. ( national autistic society )

http://www.autism.org.uk/?gclid=CJ_Cqpqzm6gCFUtC4QodE14mHA

Hammyman

Please join the forums on the National Autistic Society website. There is a wealth of information on there. If you join NAS, they can help you complete the forms.