M.e

NEH

when_will_it_end wrote: »

thanks for all your help

i was also thinking about work, i was up on a disaplinary last year because i had so much time off with, well, what i thought was flu/a very bad cold that left me floored for weeks, this seems to happen alot to me, i strated popping vitamins by the hand full but did not seem to help much, i had hepititus A and have been a poorly sick person since, it may be something compleatly different but its worth writing a list to rule things out

i read the symptoms off a website to my mum last night with out telling her what the illness i was descibing was, she said that it was written for me and thats when i posted on here

thanks for the help x

You're very welcome, there are a number of us on here that have Fibromyalgia or ME or have had both so there is a lot of advice readily available....

The ME assocaition also have a telephone line that might be able to offer further advice and support if it does turn out to be ME....

Isolus

luminated wrote: »

On what basis do you say this as I had not heard this before?

I also have suffered for many many years and whilst it is not a killer it does bu**er your life big time!

M.E's been classified by the world health organisation as a neurological disease since 1969. Also more than one person has had it listed as the cause of death, Sophia Mirza being the most known case. Thankfully for most of us, it's just a royal pain in the ar*e..

NEH

luminated wrote: »

On what basis do you say this as I had not heard this before?

I also have suffered for many many years and whilst it is not a killer it does bu**er your life big time!

They have now proved that Fibromyalgia is a neuro immune disorder so i imagine ME will be of the same ilk....

LadyMorticia

I agree with other posters about writing down your list of symptoms. It's really easy to go into the doctors room and then forget a few.

I have M.E. I got it after I had glandular fever and I never fully recovered. It took me a while to get a diagnosis and I had all the usual tests so that they could rule everything else out.

It's a horrible thing to have but somehow knowing that you're not going crazy and knowing what's wrong with you can help alot.

when_will_it_end

i will keep you all updated

from reading a few web sites there does not seem to be much help around at all, but talking to others im sure will help it has up to now and it was only suggested to me a few days ago

i feel for all those that do have it, i do not want a lable, who does, but at least if i have tests i maybe able to takle what ever it is in a different way, i have read changing diets ect helps

thanks every one

SadBunny

Isolus wrote: »

M.E's been classified by the world health organisation as a neurological disease since 1969. Also more than one person has had it listed as the cause of death, Sophia Mirza being the most known case. Thankfully for most of us, it's just a royal pain in the ar*e..

I was here last week - googled Sophia Mirza and managed to read some of her mother's detailed evidence.
I found it really chilling.
To an ignorant outsider, I suppose it could come across as over-dramatic, emotionally unstable etc.
I think that if Sophia had been treated with sympathy and understanding; and if the professionals involved had not been so dismissive of her requirements - then she might have lived; and learned to manage her condition.

http://www.dailymail.co.uk/home/you/article-1277519/Criona-Wilson-recalls-daughters-losing-battle-ME-She-went-hellhole.html#ixzz1Js4DOYw4
"Sophia researched her own illness and, in the one area where she was still able to exercise her stubborn independence, refused treatment she did not feel would benefit her."

I was constantly told I must exercise daily.
I tried and I tried! I got worse and worse.
Eventually I gave up. I was finished.
I only left my bed to visit the bathroom; and I mostly only ate mashed potato.
One day, after 3 weeks of complete rest in a darkened room, I thought I felt a little better.
I sat up for a little bit - then a teeny bit longer each day.
Next I took a few steps outside - and very gradually increased that each day.
Too often I overdid it - wound up back in bed for several days; and had to start over again.

Eventually I made it back to work.:T
A colleague expressed surprise - thought I'd have a fantastic suntan after sitting in the garden all summer.