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sogs

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Plans_all_plans

Could you explain why you are worried about your son being reassessed?

If the doctor seems to think a reassessment may be useful, then what harm could it do? Maybe I don't understand, but if you could clarify, it'd be helpful.

Pixiechic

Hi,

I too am wondering why it would be an issue for your son to be reassessed? Surely if the Doctor is questioning the diagnosis it is worth it? You say that your 12 year old son was diagnosed with ASD at the age of four and yet 'for the past 12 years we have believed that my son does have ASD'. Since birth and without any proffesional diagnosis? Did you have any reason to suspect ASD?

I would have thought that a certain diagnosis is better than a suspected diagnosis. The implications of a misdiagnosis could be far more damaging. If there is a chance that this could be a rectifiable behavioural issue, with medication not required, then it would seem to me to be a positive move to seek other proffesional help. Of course, a second opinion from another Doctor would be a prudent step.

rachbc

I too would be interested in why you are so resistant to a reassessment...if the diagnosis is right you have lost nothing, if it is wrong you will get a more upto date and accurate picture of your son's condition to enable you to move forward better....8 years is over half his lifetime ago and a lot can change in that time...

Imp

The study of all these behavioural problems is still a young science, with few hard and fast rules. You will find someone with a contradictory opinion for just about everything. This new doctor may have thought your son's symptoms were suggesting a different diagnosis, and he may be right. He also may be wrong.

Anyway I have put in a complaint as this is totally messing my family around having a diagnosis then taking it away, for the past 12 years we have believed that my son does have ASD he exhibits alot of the traits although he is not classically asd.

It sounds like what you want is a name to give your son's behaviour, but if it is the wrong name, then any treatment may not be effective. Your son might not have any disorder, he might just be an individual in the rich tapestry we call life.

Plans_all_plans

Hi sogs, I hope we haven't upset you. I don't think anyone was criticising you, just trying to get to the bottom of it.

There are many parents on here who have ASD children. If you kept your original post up they may be able to help you. Best wishes.