Is it worth applying

iwannanicerlife

My daughter was awarded dla on the basis of her hypermobility. If your daughter has additional care needs, I would defintely apply.

I enclosed copies of letters from her various consultants and a copy of every report from physio/OT/rhemuotologist etc we have seen over the past four years.

As the poster above, has she been checked for Marfans?

Pretani

go the the citizens advice and they will help you fill it in. When a child reaches 16 they can be responsible in filling in their own forms and receiving the money themselves. If not, they can appoint you as their representative.

Indie_Kid

Pretani wrote: »

go the the citizens advice and they will help you fill it in. When a child reaches 16 they can be responsible in filling in their own forms and receiving the money themselves. If not, they can appoint you as their representative.

At 16, you don't need to prove that your 16 year old disabled child has more care and /or mobility needs than any other 16 year old. The 16 year old just needs to have a disability that causes them to require care and /or mobility help from another person.

Pretani

All I was saying is when a person turns 16 they are deemed by the government to be capable of filling in their own forms and accepting payment themselves. If they can't do this for some reason or another the government asks that they name someone to act on their behalf, ie- fill in the forms and recieve their money.

I wasn't talking about disability or care

strong96

no shes never been tested for marfan, but then shes only been diagnosed in the last 8 months, we are forces in germany, b4 coming here we were in england and she was never seen by a hospital cause the doctor just kept saying she had growing pains for the last 3 years we battled to have her seen with no results,. since moving here she was seen by a specialist within 2 weeks, she has more tests they are going to do but not sure what they are exactly but the doctor thinks there might be underlying conditions. what is marfan never heard of it?

FleurDuLys

Marfan's Syndrome is a connective tissue disorder. People with Marfan's are typically (but not always) very very tall, and often develop spinal curvatures. There are a whole raft of other possible symptoms including joint hypermobility too. It's good news that they're already on the ball about testing her for an underlying condition, as they'll certainly pick this up if she has it. Don't worry, I know a handful of people with it and they are fine

strong96

hi thanks for that they did mention something about a tissue disorder so i would say that is amongst the test they have yet to do, so many tests but at least we are getting somewhere

TOBRUK

strong96 wrote: »

My daughter suffers from Scolosis, hypermobility of her ankles and coagulopathy.

yes her movement is affected, yes its sometimes that bad she is bed ridden, yes she is on high dose meds.
has physio 3 times week,
specialist every 4 mths
don´t know yet if surgery is needed cause they have to wait till she is 16, she is only 14

Hi strong96, to answer your question 'is it worth applying' the answer is yes if you think she may be eligible after reading the guidelines regarding DLA.

http://www.direct.gov.uk/en/disabledpeople/financialsupport/dg_10011731

sunnyone's advice is important as it is always the wrong advice to base your application on the 'worst day'! I have seen many on this forum advising people to base the whole claim on someone's worst day but this is the wrong advice.

I know nothing about your daughter's illness/condition but this is irrelevent as it has been said here, it is based on the mobility and care needs of the claimant. Even if some state that they have the same condition/illness and they can't get DLA it doesn't mean that your daughter can't! No two people are the same ... If any two people suffer with the same illness there can be big differences as there may be other factors involved. Two people diagnosed with the same illness may have totally different degrees to the illness, their medical history will be totally different and as such will affect them differently! As it has been said it is nothing whatsoever to do with the diagnosis - it is how it affects you.

As you have said, you have nothing to lose by applying for DLA. However, do tell the truth and give a full account of how the condition affects your daughter on good days and bad days - NEVER base the application on her worst days only whatever anyone says as it is the wrong thing to do! I do understand that a 'good' day can still be 'bad' (compared to a healthy person) but you do need to give comparisons.

Hope this helps.