anyone else with Chronic Fatigue/ME worried?

Ewan154

Hi,
As I have said before, I been claiming incapacity benefit since about 2000 for Chronic Fatigue/ME. I also have depression and paranoia and only go out of the house with my mum, never on my own. There are some days where I struggled to get out of bed due to tiredness and feeling very sick. I also get very tired quickly as well. I also have no concentration as well.

Any- like everybody I am very, very worried about my benefit being stopped. i am claiming incapacity still and have just my forms back a few weeks ago and waiting to hear whats going to happen.

The thing is, everything I have read in the newspapers on the news about what the goverment are going to do to people on incapacity benefit is making me ill. I am worried sick. I am thinking about it every min of the day.

kukka

hi i just joined forums today.i been loking about claiming dla as i still dont i was far too worried i would be turned down and too stressed to got through it

i also suffer from M.E very housbound and bedbound for a lot of it.on top of that i have such a low immunity i am recovring from months of other bugs one after another so have been nowhere except docotrs for last few months

i too am very worried what they are going to do about the incapacity ben as i cant work cant look after myself and am worried what wil happen if they decide M.E does not class as disability so i fully empathise with you :(:(

KxMx

Kukka, do you take any vitamins? I started taking echinecea for immune system because I was getting bug after bug. Am hardly ill now with coughs and colds. I get the pricey ones for Holland and Barratt, they are worth it and usually on offer. I also take a multi vit with iron and for added protection Garlic during the winter.

I'm on IB too (for ME and something else) and it's hard not to be worried with all that's going on. I know it's hard but try not too find problems until the appear

The discrimination against ME is shocking, it is classed as a Neurological condition by the World Health Organisation. you try telling some GP's that!!

bambammy

http://www.davidicke.com/forum/showthread.php?p=1059433351

Here are some topics that are talking about herbals and vitamins are going to be banned.

http://www.davidicke.com/forum/showthread.php?t=54275

andrew71

I thought I was the only person with M.E/CFS to be worried too. My DLA is due for renewal in February next year and I believe the IB is up next year too.
I can understand how you feel worried. With M.E if you are out of the house then to others you must be fine, but they only see you on those good days. Now imagine if that was in a job. Would somebody employ somebody who could only work certain days when their body was upto it?

"Sorry boss I cannot make it in today, Yeah I know I've only worked 3 days out of 10 and i understand I won't be paid for the day I've missed but sorry but I cannot help having ME"

All this finding out what you can do rather than cannot do may be fine for some but somebody with M.E or Fibro which I also have is going to struggle.
With this government it wouldn't surprise me to see certain illnesses to be classed as all in the mind

Mojisola

My son's IB renewal has just been sent off. He had help from the Welfare & Benefit Advisors from the council. They have warned him that he will almost certainly be classed as fit for work because that's what they are seeing happening with other people. The massive increase in the number of appeals they are having to do is really stretching the service.