Bombshell

milliebear00001

niklepic wrote: »

Hi Millie. Thanks for your reply. I've just been referred for genetic counselling to see if I'm a carrier. I do have DD who's 12 but i don't think she can be tested for carrier status until she's older. I've joined so many foundations the last few days I'm feelin slightly overwhelmed. DS does have learning difficulties and functions at around a three year old level. He is starting to learn his letters and numbers but nowhere near reading yet. The lady who's coming on Friday is also going to go into his school to see what help he can get there. I think the next step is a SEN.

Yes, he will be assessed and in all likelihood, will have no problem getting a 'statement' of his special educational needs. He will receive extra funding, and almost certainly, dedicated support in school. The statement is reviewed each year and you will be involved in the process along with his school.

lisaloo1977

I just wanted to wish you luck for the future and send big hugs.

I know this is a moneysaving site, but i just donated to the Muscular Dystrophy Campaign that was in a link on an early post. I have a 4 year old boy and i know how precious all of our children are, so we have just sent one of his christmas presents in the form of a donation, to hope that we can find a treatment for these illnesses.

Best wishes, positive thinking all the way xxx

niklepic

lisaloo1977 wrote: »

I just wanted to wish you luck for the future and send big hugs.

I know this is a moneysaving site, but i just donated to the Muscular Dystrophy Campaign that was in a link on an early post. I have a 4 year old boy and i know how precious all of our children are, so we have just sent one of his christmas presents in the form of a donation, to hope that we can find a treatment for these illnesses.

Best wishes, positive thinking all the way xxx

Thank you so much lisaloo x It means an awful lot to us xxxx