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CFS sufferers?

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Comments

  • Trialia
    Trialia Posts: 1,108 Forumite
    As for caffine and sugar you are better off having regular meals with carbs and protiens for energy make sure that you have breakfast i didnt use to and found i was so much worse.

    Didn't say it was a good thing to do, just said it's what I do do - mostly because I don't have the energy and cognitive processing capability to make and eat regular healthy meals. *sighs*
    Homosexual, Unitarian, young, British, female, disabled. Do you need more?
  • kurgon
    kurgon Posts: 877 Forumite
    A great deal of advice is out there on what to eat and not to eat. IN relation to caffeine it is difficult for the body to process and can lead to energy being used for this, thuis leading to tiredness. The other side of the coin is that if you keep eliminating things frm your diet (other recommendations are cow's dairy prodcuts, white rice, tuna, processed fruit juices, alcohol, fizzy drinks, etc etc).it is a never ending circle and you end up with malnutrition issues and an inability to tolerate anything. I personally now only drink filtered ater (had a filter put onto the mains for one tap) na d do not drink tea.coffee or drink alcohol. This has left me feeling a lot netter and I can now make it through days without napping (or most of them anyway).
    HTH
  • jazabelle
    jazabelle Posts: 1,707 Forumite
    Unless I'm in a horrible flare and I just can't help falling asleep, I will not allow myself to sleep during the day as I then find I won't be able to get to sleep at night, then will head straight into flare up.

    I do allow myself to sleep as much as I want at night though and not feel bad about it. I often go to bed at 7 - 8pm and sleep through until 12 the next day. It's what I need to do to allow myself to work part time.

    Pace as much as you can and don't feel guiltly. Don't force yourself to do housework if you don't feel like it - or if you do follow the 10 minute method. Clean one area for 10 minutes, then go and rest for the remaining hour. Then do another 10 minutes, and so on. You might not be able to clear the whole house that way, but it keeps things going as much as possible. In 10 mins you can clear up a floor, or hang some washing out, or do some washing up. But you must rest!

    Is there any way you could afford a cleaner, even for an hour a week? Could you speak to social services about getting some money for help towards this?

    Otherwise - I don't really have tips, as I'm crashing all the time at the moment, and have spent three weeks on the sofa!!
    "There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow." - Orison Swett Marden
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