A short sad history of ME/CFS

mardatha

Well.. I am not really fussy about a blood test, just speaking personally - Because even if I got my gp to do it (which he wont) then even if it came back positive, what then ? I already know there's something wrong with me, and I know its physical and not mental. I just want a CURE lol!!

ash4becks

mardatha wrote: »

Well.. I am not really fussy about a blood test, just speaking personally - Because even if I got my gp to do it (which he wont) then even if it came back positive, what then ? I already know there's something wrong with me, and I know its physical and not mental. I just want a CURE lol!!

but i am at the dignosis stage so then i would no why i feel like this if positive

NEH

prettypeach wrote: »

Yes, more info on blood test would be great.

mardatha wrote: »

Well.. I am not really fussy about a blood test, just speaking personally - Because even if I got my gp to do it (which he wont) then even if it came back positive, what then ? I already know there's something wrong with me, and I know its physical and not mental. I just want a CURE lol!!

ash4becks wrote: »

but i am at the dignosis stage so then i would no why i feel like this if positive

I don't particulary want to post it on here but will respond by PM...It's showed something up for me but may not do for everyone and i don't think anyone would ever get it if they didn't pay for it or their insurance company pays for it...

Mardartha, for me i now know that they can't waive the it's in the mind stick at me as it clearly shows something is wrong which is half the battle i have been having that apart from a raised white blood cell count 17 years ago and low folic acid nothing else has come back abnormal.

mardatha

Oh yes, absolutely wasnt getting at you pet. You were sharing what worked for you and thats great. Maybe a few years ago I wouold've been exactly the same But now I'm too old and tired and ratty to bloody care any more. LOL !

sunnyone

My son has a compromised immune system and he gets a multitude of tests on the NHS, a NHS immunologist can order a multitude of blood tests among other diagnostic tests and they show up everything and anything without paying privately.

My son is currently having another long period of post virus fatigue, he has these regularly and it shows up in his blood tests, certain proteins are more prevalant and they indicate his current level of fatigue/recovery.

Im sure other NHS doctors can do the same tests.

ash4becks

sunnyone wrote: »

My son has a compromised immune system and he gets a multitude of tests on the NHS, a NHS immunologist can order a multitude of blood tests among other diagnostic tests and they show up everything and anything without paying privately.

My son is currently having another long period of post virus fatigue, he has these regularly and it shows up in his blood tests, certain proteins are more prevalant and they indicate his current level of fatigue/recovery.

Im sure other NHS doctors can do the same tests.

well as i have to see second rhemy i will ask about that M.E speicalist aparently, just hope things are sorted soon get some answers cope as best as i can and get on with my life

KxMx

mardatha wrote: »

Oh yes, absolutely wasnt getting at you pet. You were sharing what worked for you and thats great. Maybe a few years ago I wouold've been exactly the same But now I'm too old and tired and ratty to bloody care any more. LOL !

Yes I agree with you there, i'm 23 and had ME since I was 16, resigned to my fate now really, and no good asking about this test since my local ME service is far too far for me to travel to!

mardatha

My doc says there's nowhere in Scotland but I think that must be a fib. I got sent to a consultant in "infectious diseases" in Edinburgh. He didnt know why and neither did I LOL!

ash4becks

mardatha wrote: »

My doc says there's nowhere in Scotland but I think that must be a fib. I got sent to a consultant in "infectious diseases" in Edinburgh. He didnt know why and neither did I LOL!

there is a specialist M,E in sunderland might help one of you but depends where you both live i guess

NEH

mardatha wrote: »

My doc says there's nowhere in Scotland but I think that must be a fib. I got sent to a consultant in "infectious diseases" in Edinburgh. He didnt know why and neither did I LOL!

Well there is two in Glasgow but they won't refer you to them...they don't like referring people on...

Even when i went to one of the specialists in Glasgow i had to ask for a letter from my GP to try and get an old insurance policy to cough up the money....My GP didn't even ask who i was going to see or anything, gave me a couple of moans about having to write a letter and that was it...Then i found out from my specialist that my GP was also someone else's GP, so must have known about him....It really is closed doors with GP's...

I went to see a specialist in Sunderland about 5 years back to get some help with my ME as it was then but he was pretty senior then and i wouldn't be surprised if he had gone to the great cake shop in the sky...

KxMx i am like you resigned to my fate after 17 years but as this current relapse with the Fibro is wearing on i jsut wanted to hear the latest opinion on what new techinques if any were being carried out as time moves on. I'm trying new treatments now, i don't hold out much hope given the side effects are being troublesome but as there are very small positive signs that is what is keeping me going. I didn't need that test but now i have had it and it proves that there is someting physically wrong i can legitamately next time a GP tells me it's one of those illnesses i can say well look at the blood test result, you can't really argue against science and cold hard facts...

As some of you were asking about the blood test i did another google search this morning. It may just be my clinic does it, just thought i had better warn you.