Some advice RE child DLA

pregwithno4

Hi there everyone.
My 4 year old son was diagnosed with Bilateral Perthes Disease back at the beggining of april. We were told to put in a claim for DLA. He was put into a wheelchair and told to be kept completely non weight bearing and bed rest. He has quite a bad case im told and he has severe pain, especially during the night. He often isnt 'with it' when he is in pain and quite often urinates underneath himself when writhing with pain.
We were waiting on a letter back from the consultant and I was rang yesterday and asked a couple of questions. They asked me if im up during the night with my son which I am, about 45 minutes 2-3 times a night, how far he can walk? , well he isnt supposed to walk about at all. Consultant report said to mobilise as much as pain allows. well he can walk from one settee to another or into the kitchen but doesnt manage the stairs and so has a commode downstairs.

She told me we would have a decision by next week, my stomach is in knots since and its driving me mad.
Whats the likelyness he will get awarded anything ?
Whats the success rate of them awarding him ? or will we have to appeal ?

Indie_Kid

A lot of it depends on how much detail you put on the form. Good luck!

DX2

pregwithno4 wrote: »

She told me we would have a decision by next week, my stomach is in knots since and its driving me mad.
Whats the likelyness he will get awarded anything ?
Whats the success rate of them awarding him ? or will we have to appeal ?

Please don't stress yourself out about this.

pregwithno4

Its so hard not too be stressed. My partner isnt working because i also have a baby at home and without both of us home we cant get out of the house with both pram and wheelchair to get my older 2 too school, shopping, appointments ect...

DX2

pregwithno4 wrote: »

Its so hard not too be stressed. My partner isnt working because i also have a baby at home and without both of us home we cant get out of the house with both pram and wheelchair to get my older 2 too school, shopping, appointments ect...

I understand but you need to hold on just a wee while longer, there is no point in getting stresed about "what if's". If things don't turn out as expected post again there will be plenty of people to help you then at the moment all we can do is speculate.

pregwithno4

I know , thankyou its nice to know people care x

Invasion

I'm not getting at you, just a little confused.. You say that your son is not allowed to walk at all, and then you say that he has been told to mobilise as much as pain allows... Which is contradictory.

DLA mobility is considered on how far you can walk outside though, so if he cannot walk outside at all then you need to say so

DX2

pregwithno4 wrote: »

I know , thankyou its nice to know people care x

I notice in another thread you got your letter this morning, not worth the stress hey

sox8369

Did she get the award ??? - ahh i do hope so. Original poster - if you are still mooching about on the forum, let us know...and i hope your son (and you of course) is coping ok x x

Lou76

sox8369 wrote: »

Did she get the award ??? - ahh i do hope so. Original poster - if you are still mooching about on the forum, let us know...and i hope your son (and you of course) is coping ok x x

Sox, thanks to DX's post I clicked on Preg's posting history and see her wee boy has been given High rate Care & Mobility. :T

Preg, "I'm chuffed tae bits fur yae hen".

sox8369

Thats brilliant - i bet she is thrilled to bits. I am sure it will make a big difference to the family and to her son. Its nice to hear some good news stories for a change. Best wishes to Preg if you read this x x