Blue Badge

ash4becks

pwales wrote: »

thats the point im making!!! the lists of problems to try to justify hrm and blue badge ...read through all her posts you will see a pattern its all about reading up on whats required then developing the symtoms to fit...just read through the posts

why would i need to lie on here, things have went from 6 months ago to me being fine with pain in my knee something i always have had to barley being able to get out of the flat

cherub1965

i just read the declined BB thread.do you think they make people who they dont think are entitled go up the stairs as part of the test? ashamed to say i had a giggle at the replies.:rotfl::rotfl::rotfl::rotfl::rotfl:

ash4becks

cherub1965 wrote: »

er,no you wouldnt but i hope for your sake you dont get it.

i hope i dont either my dads mam had reum arthritis died before i was born and was in a chair, but you are more likly to get arthirits or osteoporosis because my ligiments, musles and cartlage are weak , hope the new drugs work

ariba10

I have Onychoptosis. Do i qualify?

pwales_2

im going back to watching the thread for a while again grounhog day again just like with the o/p

cherub1965

ash4becks wrote: »

i hope i dont either my dads mam had reum arthritis died before i was born and was in a chair, but you are more likly to get arthirits or osteoporosis because my ligiments, musles and cartlage are weak , hope the new drugs work

so do i .not looking forward to it as i react to everything badly.the downside is it can cause lymphoma in later life.live for today is my motto:). you are only a young girl,you should try and make the most of your life instead of worrying about badges etc.my son has chronic fatigue and he just gets on with it as much as he can.ok,he crashes for days on end but he tries to get on with it.hes starting uni in sept instead of lying in bed all the time.not having a go at you ash before you start ranting:D:D.i understand your frustration but dont let it become an obsession.just be thankful for the good days,doped up or not.

Trialia

cherub1965 wrote: »

er,no you wouldnt but i hope for your sake you dont get it.

Eventually she will, though, and so will I. It's what happens with hypermobility syndrome and EDS when you have it badly. Wear and tear lands you with joint damage - my father has early-onset osteoporosis and arthritis from it.

ash4becks

cherub1965 wrote: »

so do i .not looking forward to it as i react to everything badly.the downside is it can cause lymphoma in later life.live for today is my motto:). you are only a young girl,you should try and make the most of your life instead of worrying about badges etc.my son has chronic fatigue and he just gets on with it as much as he can.ok,he crashes for days on end but he tries to get on with it.hes starting uni in sept instead of lying in bed all the time.not having a go at you ash before you start ranting:D:D.i understand your frustration but dont let it become an obsession.just be thankful for the good days,doped up or not.

iam hiting the crash stage after siting down doing 20 mins house work often then 2 hours having to rest or sleep so i hope you can see why i want the help, i was so happy a few weeks ago sore to of my best mates and all i did was get lift down to the chippy sit on a bench and chat and eat chips sounds like nothing but that knocked me for 6 the next 2 days , 6 months ago i could walk the whole length of the leas and beach about 3 miles with my dog who is my life i have a fight on my hands for her and shes the most inportant thing in my life i have to get better for i would rather have to save up for car the works be able to walk half decent then have the blue badge or the HRM after all i have the spring and the goldie i have always wanted to add to my family

but iam very stubbon i never was but years of bullying i never stuck up for myslef and i want the help to get sorted as much as i can , my pain isnt under control and i just want to no what is going on and get the best treatment there is , i just hate having to rely on other people like mam and dad i moved out so i didnt have to do that , i just want the help i can get now and bulid up musle so hopefully i dont end up with crutches or a chair if it does get that bad

i no you mean well i do want my life back and college etc

ash4becks

Trialia wrote: »

Eventually she will, though, and so will I. It's what happens with hypermobility syndrome and EDS when you have it badly. Wear and tear lands you with joint damage - my father has early-onset osteoporosis and arthritis from it.

thankyou hunny alot of people just dont get how much this affects me thankgod you do and your the same age as me :T:A

theres not a massive difference between hms and eds, tbh i think its more eds with how bad it is

cherub1965

ash4becks wrote: »

iam hiting the crash stage after siting down doing 20 mins house work often then 2 hours having to rest or sleep so i hope you can see why i want the help, i was so happy a few weeks ago sore to of my best mates and all i did was get lift down to the chippy sit on a bench and chat and eat chips sounds like nothing but that knocked me for 6 the next 2 days , 6 months ago i could walk the whole length of the leas and beach about 3 miles with my dog who is my life i have a fight on my hands for her and shes the most inportant thing in my life i have to get better for i would rather have to save up for car the works be able to walk half decent then have the blue badge or the HRM after all i have the spring and the goldie i have always wanted to add to my family

but iam very stubbon i never was but years of bullying i never stuck up for myslef and i want the help to get sorted as much as i can , my pain isnt under control and i just want to no what is going on and get the best treatment there is , i just hate having to rely on other people like mam and dad i moved out so i didnt have to do that , i just want the help i can get now and bulid up musle so hopefully i dont end up with crutches or a chair if it does get that bad

i no you mean well i do want my life back and college etc

i know how you feel hun,this time last year i did a 6 mile ghost walk thing,ending up in the cemetery ghostbusting,the week before that i was at the races with my OH,used to have regular nights out with the girls.i get so wound up and frustrated myself and i am 45 in august,feel like have lost my independence so i do honestly feel for you.i see my son with CFS and it breaks my heart.you are all so young to be so ill,at least i had til i was 41 before i got rheumatoid.i was fine until i was attacked and left for dead,shock brought it on,and believe me i was terrified to go out for ages and i did have panic attacks,scared the life out of me.my arthritis isnt under control as i have reactions to everything.i have just finished with district nurse dressing both legs,blistered knee to toe due to drug reaction which happened in march.badly scarred.hopefully new meds will work,am looking into doing an open uni undergrad degree,just so am not fed up,stuck here.i hope you,tralia,sh and others who have posted get what you need badge and benefit wise.would be great if there was a fairy to wave the wand and make us all better.