Is it worth appealing?

sox8369

Good Luck and keep us informed of how the appeal goes x

JACEY

Always appeal . I personally was turned down 3 times for my own disability. It can be a lot of hassle but i won in the end. Good luck

ash4becks

fight them all of the way you have nothing to lose, iam pushing for higher rate moblity and after today i no i really need it despite diclaphenic and 2 co-dine


but if i were you i would incudle printed out website info on condion which i also have my doc didnt even know about it today , and might be a good idea for you to go on to hypermobility . org site as they have this kind of information and a kids section that you may find useful theres lots of info i have just joined and learned a few things already but theres info about going to great olmand street for a 2 week rehab etc on there might be of use to you,

but might also be idea to get the everdance your self of the doctors before dla ask for it might make things quicker x

sunnyone

ash4becks wrote: »

fight them all of the way you have nothing to lose, iam pushing for higher rate moblity and after today i no i really need it despite diclaphenic and 2 co-dine


but if i were you i would incudle printed out website info on condion which i also have my doc didnt even know about it today , and might be a good idea for you to go on to hypermobility . org site as they have this kind of information and a kids section that you may find useful theres lots of info i have just joined and learned a few things already but theres info about going to great olmand street for a 2 week rehab etc on there might be of use to you,

but might also be idea to get the everdance your self of the doctors before dla ask for it might make things quicker x

Googled papers have no place in DLA claims and it can actually harm your claim, you need proprer evidence about your sons health.

Using Diclophenac and dyhdracodine for pain relief and still being in pain (I think you mean those drugs), have you been to a pain clinic?

Those drugs are sweeties for chronic pain patients and much better drugs are available that can help you find the drug cocktail that works for you.

I dont get the first lines though, higher rate mobility?

What does 2 drugs have to do with that?

ash4becks

sunnyone wrote: »

Googled papers have no place in DLA claims and it can actually harm your claim, you need proprer evidence about your sons health.

Using Diclophenac and dyhdracodine for pain relief and still being in pain (I think you mean those drugs), have you been to a pain clinic?

Those drugs are sweeties for chronic pain patients and much better drugs are available that can help you find the drug cocktail that works for you.

I dont get the first lines though, higher rate mobility?

What does 2 drugs have to do with that?

the 1st 2 lines are about me being daft and going to asda took me 4 hours to get around had to stop loads of times even with the painkilers thought the flare up was over and i was wrong and are now paying for it bigtime today , and no i havent been to a pain clinic all of this will probs be sorted at consutant appionmenmt as doc said thats up to him , iam trying to appeal atm for higher rate dla moblity

as for the print out of condition i did mean in addition to cosultants letters etc as its not a comman condtion and the site i give is a recognised site for information and respected as such x

sunnyone

ash4becks wrote: »

the 1st 2 lines are about me being daft and going to asda took me 4 hours to get around had to stop loads of times even with the painkilers thought the flare up was over and i was wrong and are now paying for it bigtime today , and no i havent been to a pain clinic all of this will probs be sorted at consutant appionmenmt as doc said thats up to him , iam trying to appeal atm for higher rate dla moblity

as for the print out of condition i did mean in addition to cosultants letters etc as its not a comman condtion and the site i give is a recognised site for information and respected as such x

The consultant wont sort things out, it up to your GP to send you to the pain clinic and other specialists, not all hospitals have all deptments for inter departmental referals and as soon as the trust gets your referal you go on the list/get an appointment if you wait to see a consultant expecting them to refer you on you join the list/get an appoint at that much later date.

My husband is currently waiting on the gastro list thats 11 months long, for endocrine the wait was 6 weeks and if he relied on one to refer him to the other it would be 11 months + 6 weeks or vice versa.

HMS is a very common condition and with the internet its a new popular diagnosis, people see there GPs everyday and tell them that they have it/FMS/ME/EDS and all the other fasionable illnesses and I personally wouldnt insult my GP by telling her how to suck eggs because shes good and we have agood relationship that I wouldnt want to sour.


Higher rate mobility is hard to get (harder now, it seems) and your appeal will only succede if you have the medical evidence to support your claim and from your posts you dont, lost medical notes and no consultant to back you up wont get it, do you have anymore supporting evidence?

I would round up everyone involved in your care for the last 12 months to write supporting letters for your appeal, you can ask for copies of both GP and hospital records if you pay for them and you could go through them and see whats there that might help.

For the future ask for copies of all corrispondance between your new consultant and GP, then they are there if/when you need them.

annies_mum

My son has being turned down flat, for DLA today, i thought when i heard (over the phone) i really haven't got the strength to fight it, but you know in your heart of hearts you are right and from somewhere you find the strength to get up dust yourself down and get the wheels of appeal moving and meet it head on. Good luck x

Sarsie

hunnybugs1 wrote: »

The school dont seem to care that he has problems as he constantly comes home saying they tried to make him do things at PE that he is not able to do. They have already received a copy of the OT report but don't seem to make any allowances for him being different.

Right that's definately not on!

I don't quite know what is the best thing to do about that, but I wanted to say I understand that sometimes we people with disablities/parents of people with disabilities feel like we're making a fuss in asking for our rights. I want you to know that is is NOT making a fuss. The Disibility Discrination Act isn't a charitable notion that organisations should be pitying and sympathetic.. It's a law that says they HAVE TO be reasonable and fair. Your school aren't being fair, they're not entitled to take that attitude and you don't have to put up with it.

If you take a stand (in a calm and reasonabe way of course) then your boy will come to learn he is not a pathetic wretch he is an equal. That's good for him. It's also good for each and every one of us with a disbility.

I wasn't born disabled, I became disabled in my 20's. As a fit healthy person I had always thought there wasn't a lot of discrimination, but ahh crikey I had no idea! The single biggest kind of discrimination I have encountered has been the disbelief kind. When people find it hard to accept you really can't do [whatver] and treat you like you're a pain in the ars* ! This kind of discrimination is socially acceptable it seems, encouraged even (read the Daily Mail some time- we're ALL workshy/scroungers/inconveniences to them). The thing is, as you're finding, it's the worst kind of discrimination because it eats away like a slow acid at what your life should be. Your self esteem as a diabled person (and as a mother of a disabled person too I would imagine) gets erroded and we feel less and less entitled to live our life like proper, equal, humans.

So please please have the courage to keep insisting your son is treated as a child and not as an incovenience. It's not you (even if it feels like it), it's absolutly all them. Don't stand for it.

At a loss for any specialist organisations to help you, so gonna say the CAB again as I know they cover every aspect of rights and laws and disibilities.

Don't let the b*stards grind you down! :A

Sarsie

Broken_hearted wrote: »

Good luck with the appeal. They turn people down in the hopes that they will not have the energy or emotional strength to fight it. You know how your sons condition effects yours and his life, take it as far as you can. You have nothing to lose stay strong.

Well said. I second every word of that. :cool:

ash4becks

sunnyone wrote: »

The consultant wont sort things out, it up to your GP to send you to the pain clinic and other specialists, not all hospitals have all deptments for inter departmental referals and as soon as the trust gets your referal you go on the list/get an appointment if you wait to see a consultant expecting them to refer you on you join the list/get an appoint at that much later date.

My husband is currently waiting on the gastro list thats 11 months long, for endocrine the wait was 6 weeks and if he relied on one to refer him to the other it would be 11 months + 6 weeks or vice versa.

HMS is a very common condition and with the internet its a new popular diagnosis, people see there GPs everyday and tell them that they have it/FMS/ME/EDS and all the other fasionable illnesses and I personally wouldnt insult my GP by telling her how to suck eggs because shes good and we have agood relationship that I wouldnt want to sour.


Higher rate mobility is hard to get (harder now, it seems) and your appeal will only succede if you have the medical evidence to support your claim and from your posts you dont, lost medical notes and no consultant to back you up wont get it, do you have anymore supporting evidence?

I would round up everyone involved in your care for the last 12 months to write supporting letters for your appeal, you can ask for copies of both GP and hospital records if you pay for them and you could go through them and see whats there that might help.

For the future ask for copies of all corrispondance between your new consultant and GP, then they are there if/when you need them.

i never asked to be dignosed with HMSyndrom there is a diffenrence from being double joint incase you didnt no !!!! btw i went becase doctor was concerned over my knees and the pain i have suffered from a childhood accident i didnt even no it existed before 2 years ago i really dont like your attuide this isnt a fashion accessory iam sure if this was athrists you would think differntly and not something i want to have i wouldnt wish the pain i have on my worst enermy taking 4 hours to go food shoping in pain isnt my idea of fun and i wish i had my life back to go out clubing and having fun with my mates like any other 24 year old i cant wear lovely high heels i adore i live in flats because i can walk that little bit better in them if i could take a pill for all of my health issues to go away i would in a second 2 years ago i could do all of this

so dont say iam making this up i have medical everdance i dont discriminate against and conditions you have so dont with me

and fight for his claim he sounds like he has needs and pain and no kid deserves that i no myslef x