Can i claim DLA for my son with a Prolapsed Bowel??

[Deleted User]

Lauzxx, whilst it a major problem for you and obvioulsy distressing to know your child once ate and now wont the DLA are not interested in that.

They need to apply the law which states they must compare him to other children of the same the age, not to how he was 6 months or so ago.
Other children as you know are fussy eaters, need constant attention due to their age, need lots of nappies etc which is what Sh1305 is pointing out.

Lauzxx

Hi shel

thanx 4 ur comment. I understand about the eating in comparison to kids his age, but I'm just saying that this is a n affect of the bowel prolapsing....that is the topic that I am most concerned about. The other silly comment apshq made about not needing training to push the bowel back in was a loads rubbish.

[Deleted User]

I wouldnt have a clue about how to push a prolapsed bowel back in and would be so scared I would damage him further.
I do know that carers of people with epilepsy who need rectal medication get training. Either from a nurse, in the form of a video and booklets or both.

I think that right now what you may need is not DLA but support from professionals and maybe other parents who can understand the issues. Who can help you learn how to do things properly and cope with the problems that are associated. Maybe you could contact the hospital he is under and ask if they have a specialist nurse or support worker. Or speak with your GP and the Childrens Dept of Social Services to see if there are any relevant services they could refer you to.

Aputsiaq

As I have said, you have probably done it more times than most Nurses ever have. Also quite a lot of doctors too.

Yes, its sensitive all that...but being timid and moaning about it is not helping your son. Children pick up on their parents worries.

You need to be lubricated well and be quick about it. Practice makes perfect.

It still isnt a DLA issue, its an issue concerning adequate support.

Invasion

Practice pushing a prolapsed bowel back in without any training does not make perfect, it makes for a ruptured or necrotic bowel, because it hasn't been put back in properly! No mother should be expected to do this unless they have had the appropriate training. However, as others have said it seems unlikely that OP will be successful in claiming DLA as higher care needs are not there the majority of the time.

Mum2twins98

Lauzxx wrote: »

Hi

Wondering if anybody can help me pleeeeeease!!

My 1 yr old son has been suffering with a re-occuring Prolapsed Bowel...yes not very nice at all....its when his bowel literally comes out of his Anus, bleeds etc, causes pain and discomfort for him and is VERY hard to push back in as it comes out about 3 inches.

Obviously, this is not right especially for a baby!!!...i t first happened in November and we were back and forth to the Childrens Hospital where the only advice i had was to try and push it back in myself...i have on occasions but that was under a lot of pressure...there r times where i can't get it in as squeezing the bowel causes more bleeding. I was given a load of medical equipment to use (latex gloves, sterile water etc) to help and that was it.

He was put on Movicol sum sort of laxative to help his stools come out without him feeling the need to strain (hence y the bowel started popping out)..., but it still comes out now and again which i have to try and push back in and obviously, I am not trained to do this but as the doctors had said...this will calm down when it is ready, they cannot say whether it will stop anytime soon.

Obviously now, this has a knock on effect with him being at nursery as they call me at times due to blood being in his nappy etc which is really distressing to hear. I cant imagine how he feels. He has stopped eating certain foods and does not eat at times due to him knowing that he will have to pass stools which has the possibility of making his bowel come out also. We go through about 8-10 nappies a day now as oppose to the 15 he was going through a day but this is still excessive.

I applied for DLA on his behalf and got a letter to say it was refused because he can walk etc but they havent asked me to provide any details. They made it sound like they will ask me for any further info BEFORE making a decision. All it says is that they have used my online application, which was quite restricting anyway plus i put down many contacts for them to consult if need be.

Im quite stressed about the situation, but will be appealing....just wanted to know how everybody else feels about this case and if it will be successful??

sorry to babble

thanx

Hi and first of all this must be distressing for you BUT ... at this age he doesn't need anymore care than a child of his age and second surely this wont be a long term problem and something will be done to fix his prolapsed bowel they will not leave him with this all his life, my cousin had surgery for the same thing at a very young age, i know why you go turned down because they see your son still as a young baby they still requires nappies, my son is 11 and has severe autism he is also still in nappies even still the disability living allowance wanted a full doctors report with regards to his disability, its not that easy

Lauzxx

Thanx 4 the feedback guys, i take everything on board but will still pursue an appeal and see where that goes. Could possibly be a matter of support rather than DLA but this is y I am on this forum and asking for advice.

Adhtipuaq whateva ur name is....who is moaning?...and furthermore who is timid? Have u even got kids mate????....if u have had a bad day/ week/ month or year DO NOT take it out on me in this forum... I'm on here to get advice and a bit of support, not idiot comments. U don't sound maternal or paternal, actually u sound quite idle and not got a clue so I suggest you keep your comments to yourself in future as they are not needed.

happy_lass

Aputsiaq wrote: »

As I have said, you have probably done it more times than most Nurses ever have. Also quite a lot of doctors too.

Yes, its sensitive all that...but being timid and moaning about it is not helping your son. Children pick up on their parents worries.

You need to be lubricated well and be quick about it. Practice makes perfect.

It still isnt a DLA issue, its an issue concerning adequate support.

i dont think they are 'moaning' as you put it. My sisters lad used to have this happen to him and it is the most distressing thing for a parent to see (not to mention the child !).

Happychappy

I fail to see why someone can expect to be paid for looking after their child? any baby needs round the clock attention, so why expect to be be paid for doing it on state handouts? maybe I am missing something, and I'm sure the group hug brigade will enlighten me as to why a baby with medical needs differs in the amount of attention and care it needs?

An older child is a different matter, one which would in the normal progression of life go into schooling etc but due to the medical condition requires a parent or adult to look after it rather than be at work etc, In these circumstances I can see why the need for DLA, but not for a baby.

Indie_Kid

Happychappy wrote: »

I fail to see why someone can expect to be paid for looking after their child? any baby needs round the clock attention, so why expect to be be paid for doing it on state handouts? maybe I am missing something, and I'm sure the group hug brigade will enlighten me as to why a baby with medical needs differs in the amount of attention and care it needs?

Obviously it would depend on the needs of the baby - it's different if it's things like breathing problems, etc. Given what the OP has said, I can't really see any additional needs. Yes, he needs his bowel pushed back in; but how often? Someone needs to have the care for at least one hour per day and 5 days a week to qualify. All 1 year olds need to wear nappies. If he was 3/4, I could udnerstand it.