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vitamin B12 and M.E

mellc
mellc Posts: 48 Forumite
in Disability money matters
Hi, not sure if this is the right place to ask this advice but here goes anyway. i am seeing a osteopath who is giving me treatment called the perrin technique for M.E its very early days yet to say if its working, but he has suggested Vitamin B12 injections which have worked well for some people. my GP is pretty useless but he agrees "they can't do any harm" although he won't prescribe them or administer them. thats ok as you can buy them and i'm ok with self injecting.
i just wondered if anyone had ever had them and did they feel any better for it. x
«13

Comments

  • McKneff
    McKneff Posts: 38,857 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    No, no, no, a thousand times no.
    take your doctors advice every time.
    B12 is usually given for pernicious aneamia where the body cannot take vitamin b12 into it through the stomach wall and so has to be injected for the rest of (my life) It can kill in some cases.

    google b12 or pernicious aneamia on the internet and speak to your doctor again.
    make the most of it, we are only here for the weekend.
    and we will never, ever return.
  • cyberbob
    cyberbob Posts: 9,480 Forumite
    1,000 Posts Combo Breaker
    The Perrin technique is just another way of getting money from M.E patients for totally unproven treatments. Its up there with all these therapies. Get your GP to refer you to a Neurologist that will be of far more use to you
  • vikki_louise
    vikki_louise Posts: 2,358 Forumite
    Part of the Furniture 1,000 Posts Combo Breaker I've been Money Tipped!
    I want to try b12 injections and will ask my new consulant about them when i see him next week. My nan (who has MS (I have ME)) used to find them a great help with boosting energy, but it seems every doctor has a different opionon. My gp said they used to be able to perscribe them if your b12 levels were normal to see if they would help but they are no longer allowed, if he thinks its ok then try it providing you can afford it but only with his support (or another doctor)
    Best wins in 2013 £200 and Mini iPad. 2014 no wins. 2015 2 nights 5* hotel with £300 vouchers plus £1150 Harrods gift card
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  • soolin
    soolin Posts: 74,421 Ambassador
    Part of the Furniture 10,000 Posts Photogenic Name Dropper
    I have B12 injections for pernicious aneamia however that is via my GP and with complete medical back up and proven results. Your GP has given you his opinion and I would suggest you take that rather than any unqualified opinion from an alternative practitoner or from us casual users on an internet forum.
    I’m a Forum Ambassador and I support the Forum Team on the eBay, Auctions, Car Boot & Jumble Sales, Boost Your Income, Praise, Vents & Warnings, Overseas Holidays & Travel Planning , UK Holidays, Days Out & Entertainments boards. If you need any help on these boards, do let me know.. Please note that Ambassadors are not moderators. Any posts you spot in breach of the Forum Rules should be reported via the report button, or by emailing forumteam@moneysavingexpert.com.All views are my own and not the official line of MoneySavingExpert.
  • McKneff
    McKneff Posts: 38,857 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    I am in the same boat soolin, do you have arthritis also or just the PA.
    make the most of it, we are only here for the weekend.
    and we will never, ever return.
  • mellc
    mellc Posts: 48 Forumite
    thanks for the advice, my doctor refers to M.E as yuppy flu so i tend to take him with a pinch of salt. Dr Sarah Myhill who specializes in M.E is very keen on B12 injections. guess its back to the drawing board :confused:
  • jazabelle
    jazabelle Posts: 1,707 Forumite
    mellc wrote: »
    my doctor refers to M.E as yuppy flu so i tend to take him with a pinch of salt.

    What an ignorant prat! I'd be changing GPs as quickly as I could!
    "There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow." - Orison Swett Marden
  • soolin
    soolin Posts: 74,421 Ambassador
    Part of the Furniture 10,000 Posts Photogenic Name Dropper
    McKneff wrote: »
    I am in the same boat soolin, do you have arthritis also or just the PA.

    I'm an odd one, I have had a lot of senior consultants diagnose me with everything over the years most of which I downright refuse to accept. I am left though with some odd neuro issues , some 'funny' blood and coeliac disease. I potentially have Hashimoto's as well which is a thyroid issue but they can't agree on that one as my blood confuses many of the usual tests for it.

    I'm having a B12 jab tomorrow actually first thing monday morning ready to face the working week.
    I’m a Forum Ambassador and I support the Forum Team on the eBay, Auctions, Car Boot & Jumble Sales, Boost Your Income, Praise, Vents & Warnings, Overseas Holidays & Travel Planning , UK Holidays, Days Out & Entertainments boards. If you need any help on these boards, do let me know.. Please note that Ambassadors are not moderators. Any posts you spot in breach of the Forum Rules should be reported via the report button, or by emailing forumteam@moneysavingexpert.com.All views are my own and not the official line of MoneySavingExpert.
  • mellc
    mellc Posts: 48 Forumite
    jazabelle wrote: »
    What an ignorant prat! I'd be changing GPs as quickly as I could!
    Oh don't i wish, we live in a very remote area and there are only two doctors in the practice, ones bad and the other ones worse. i was very low a few years ago after we lost our young son, i went in to see him and said (wrongly i now know) i wished i could end it all and he said if i felt it was the best course of action then its the one i should take. i did make a formal complaint but it didn't do me any good. thankfully i don't see much of him as i mainly go to the hospital.
  • jazabelle
    jazabelle Posts: 1,707 Forumite
    mellc wrote: »
    Oh don't i wish, we live in a very remote area and there are only two doctors in the practice, ones bad and the other ones worse. i was very low a few years ago after we lost our young son, i went in to see him and said (wrongly i now know) i wished i could end it all and he said if i felt it was the best course of action then its the one i should take. i did make a formal complaint but it didn't do me any good. thankfully i don't see much of him as i mainly go to the hospital.

    That's awful - I'm so sorry you have to put up with that. :( What terrible behaviour.
    "There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow." - Orison Swett Marden
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