P.O.R.T. Registered Charity - (Pseudo Obstruction Research Trust)

inspector_monkfish

Hi there,

Not especially looking for donations (although they always help!:D), but really just trying to raise awareness of this charity and the illness it tries to help.

Our 6yr old Daughter has recently been diagnosed with Pseudo Obstruction, and we were put in touch with the people that run the charity.

It affects mainly children, and prevents them from eating and digesting food properly (my daughter is on a liquid only diet currently and has to have a stoma bag), and has to have extra nutritious milk feed via a nasal tube direct into her stomach.

Please just have a little look and read around the website, and please please tell as many people as you possibly can about it !

I'm happy to answer any questions...

Thank-you and kind regards
IM

http://www.port-charity.org.uk/index.html

our daughter's story is listed under 'PORT stories' / Daisy

vikki_louise

Hello, I'll go and have a look in a minute. I run www.postpals.co.uk and have supported 3 children with pseudo obstruction, infact one of them today is in gosh having an illostomy and pjeg put in. We supported one boy whose was very severe TPN dependant, nil by mouth and in hospital for most of his life with life threatning infections until he hada bowel transplant etc

inspector_monkfish

vikki_louise wrote: »

Hello, I'll go and have a look in a minute. I run www.postpals.co.uk and have supported 3 children with pseudo obstruction, infact one of them today is in gosh having an illostomy and pjeg put in. We supported one boy whose was very severe TPN dependant, nil by mouth and in hospital for most of his life with life threatning infections until he hada bowel transplant etc

Thank-you Vikki.
Your website looks very interesting.
Would be great if you could give us a mention somewhere....

Our Daughter had her ileostomy in Royal London Whitechapel Hospital last June, and is infact going back in on Tuesday 19th Jan for hopefully what will be corrective surgery to the stoma, as she has been having a few problems lately.:cool:

thanks for taking the time to have look
kind regards
IM

inspector_monkfish

cant believe they removed my sig!!

inspector_monkfish

inspector_monkfish wrote: »

cant believe they removed my sig!!

they allowed it back

inspector_monkfish

Fantastic news.
We had our annual Charity Ball in aid of P.O.R.T at the weekend.

We raised over £4k, and top comedian Sean Lock who was there simply as a guest, offered to be the charity patron.

Hope it can open many more doors for us....:T

inspector_monkfish

Hi guys,

I'm a TV star now !!
Thanks to my gorgeous 6yr old daughter... here is the reason why we had to cancel Februay's trip to DLP, and why the re-arranged June trip is not looking too certain now....

London Tonight...
http://www.itv.com/london/cant-eat-or-drink58440/

any questions feel free to PM me
Regards
IM

inspector_monkfish

PORT Registered Charity 1114217
http://www.justgiving.com/Tracy-Karen-Lisa-Joe