The System Has Gone Mad!!

Indie_Kid

C_Mababejive wrote: »

I get depressed,stressed,have back ache/pain,neck ache/pain,some signs of carpal tunnel syndrome and feel generally knackered. I am in full time employment and this week have worked 5 x nights. By Tonight when i finish i will be knackered. Can i get DLA?
If she has had appeals/reviews then clearly the right decision was made.

Depends if you have care/mobility needs.

[Deleted User]

C_Mababejive wrote: »

I get depressed,stressed,have back ache/pain,neck ache/pain,some signs of carpal tunnel syndrome and feel generally knackered. I am in full time employment and this week have worked 5 x nights. By Tonight when i finish i will be knackered. Can i get DLA?
If she has had appeals/reviews then clearly the right decision was made.

As sh1305 says if you have care and/or mobility needs you can apply, no one is guaranteed it even with long standing conditions and disabilities.

As for being tired after a full working week I think you'll find that happens to everyone and is not unique to those with symptoms like yours.

C_Mababejive

No the difference probably is that i have a different state of mind whilst there is a proportion of claimants who are quite content to hitch a ride on the DLA bus.

If there have been appeals and reviews,why is there an assumption that the results of such reviews/appeals are wrong?

There would seem to be no aspiration to improvement in physical and mental health,just an assumptoin of some kind of right.

kutiez2005

From the information that we have and not making any assumptions - having ME, arthritus, frozen shoulder and fibromyalgia is hardly 'hitching a ride on the DLA bus'. I'm sure the OP's friend would much rather have a bit of carpel tunnel syndrome after having the physical ability to do a full week of work. The state of mind of someone who has to deal with pain on this level is unquestionable.

The rules for DLA are finicky to say the least and it only takes a slight mis wording of your circumstances for you to lose what would otherwise be a genuine entitlement. Filling out the forms is an emotional rollercoaster for someone in need of DLA. They spend all of their days 'getting by' and focusing on what they can do and then they have to sit down for a good couple of hours (at least) and concentrate on what they can't do. It's a very depressing experience.

It sounds like what the OP is saying is that their friend made it out to watch her sons football match knowing that the exertion is going to leave them bed ridden for a couple of days after it. This tells me two things - this person has a huge heart and wants to be at the match for their son and there is a definite case for arguing HRM. If we're talking an average day here - out of 3 days (up to max 90 mins watching match & then 2 days bed ridden) the average is much closer to bed ridden than standing.

My advice would be definitely seek advice from CAB, they know the rules inside out and will do any paperwork for you. Don't get your hopes up until you speak to them but it's true to say that a huge number of cases are rejected and then subsequently successful with professional advice.

picassopete

C_Mababejive wrote: »

I get depressed,stressed,have back ache/pain,neck ache/pain,some signs of carpal tunnel syndrome and feel generally knackered. I am in full time employment and this week have worked 5 x nights. By Tonight when i finish i will be knackered. Can i get DLA?
If she has had appeals/reviews then clearly the right decision was made.

Just browsing through some posts and came across this thread which contains alot of good advice and people describing their condition in a really honest and truthfull way.
Then there are utter idiots like you, people like you make my blood boil. I only wish i could feel knackered and in pain after a week at work, instead of just getting out of bed, let alone getting downstairs and all that involves.
What do you think we claim DLA because we feel like it, oh of course silly me its a cake walk, thats why we were on here trying to find out when our benefits were going in over christmas so we knew if we could feed our families. I would like to say, you try being disabled for a week but it wouldn't do any good as you knew after a week you could go back to your niggling back and neck pain and your pins and needles. Then some people have the cheek to call us bitter, with stupid people like you out there, no wonder :mad:

Indie_Kid

_shel wrote: »

As for being tired after a full working week I think you'll find that happens to everyone and is not unique to those with symptoms like yours.

Exactly. I have days where I can be up for a few hours and then want to go back to bed. Or I'm in too much pain to sit up or walk. Thankfully, the sitting and walking problems are rare.

I can be tired doing work for 2 hours - even with a 15 minute break (as recommended - I study and have to use computers) I'm shattered.

Homemade_2

hilstep2000 wrote: »

I have MS. I get higher rate mobility. Sometimescan walk quite a way, but other times I can't walk downstairs!
Some conditions are like that, and DLA don't take it into consideration!

Yes they do. DLA staff are expert in their assesment and know exactly which illness can fluctuate and which tend not to.

Homemade_2

karinelleno wrote: »

Hi everyone,

I have come on here to pick your brilliant brains and also to vent at the same time!

I really need some advice for my friend. She suffers from depression, M.E, Arthritis, Frozen shoulders and Fibromyalgia.

She was getting DLA until last December when they decided to stop her benefits under an investigation. They has seen her standing up to watch her son's football game with her walking sticks!! She does then spend the next day or 2 in bed recovering from this.

To cut a long story short they have said she is not entitled to DLA anymore and have stopped it completely, she has appealed twice and they still say no despite supporting letters from her GP, and 2 hospital specialists she sees on a regular basis. They did not seek any of her medical staff's advice before making their decision and they also said that she can't be taking the medication that she is taking as it is too higher doseage!! :mad:

If all of that is not bad enough she had her mobility car taken away from her and only has a very tempremental mobility scooter which she uses to take her daughter to school (she is a single parent)

I really want to help her but don't know how to. Is there anything she can do? Are there any grants or anything she can get to assist her in buying a small car to try and get some independence back? She has to rely on people to take her to hospital, doctors, shopping, basically everything.

Sorry everyone, but thanks for reading and I would welcome any suggestions that you have

Your friend will not know what the investigation looked at in full and the DLA deciding to take away her DLA will not have been based on just one observation. There is more to this situation than your friend knows about or your friend is letting you know about.

DLA are not there to make people's lives miserable. They know full well what the consequencies will be if they stop someones benefit, especailly when part of that benefit is used for a car, and it is not a decision that they make quickly or lightly.

There are no benefits that are available for her to be able to buy a car.

Trialia

Homemade wrote: »

Yes they do. DLA staff are expert in their assesment and know exactly which illness can fluctuate and which tend not to.

Actually, not so much. I had to have a special letter from my consultant regarding the impact of my hypermobility on my everyday life (things like I cannot lift my left arm above my head without my shoulder coming out, etc.) because DLA staff automatically assume hypermobility is just a non-painful thing put on the list to make me look worse and doesn't affect me at all. Drives me crazy.

Indie_Kid

Homemade wrote: »

Yes they do. DLA staff are expert in their assesment and know exactly which illness can fluctuate and which tend not to.

I don't think they do. At least not when it comes to having 2 disabilities. They've accepted that my IBS fluctuates; but claim I still have no care needs. (I am hoping I am now that the awful stage of wanting to vomit when eating) They've said that my visual fluctuates; but still have said I should be able to walk down stairs with no problems on bad days because I can walk.:rolleyes: