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Fibromyalgia - diagnosed

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  • Bethankim
    Bethankim Posts: 1,030 Forumite
    I have my rhumatoligst appointment now for feb 4th - my gp was great and my blood tests all came back clear so she confirmed her intial diagnosis of fibro

    I am struggling big time at the moment - feel like im falling apart, if i get 1 or 2 good days as week then im lucky, have gone from fairly mild but niggling symptoms to chronic in the last 2 months.

    I havent made it to college today, my right leg is really bad and very fuzzy , plus the rest of my pains.

    worst bit is that i live on the 1st floor of a block of flats, its 2 sets of concrete steps to the ground and then a 300 metre ish walk to the car park down quite a steep slope - which is so icy even if i could get down the stairs i cant get anywhwere..been housebound for 2 days.

    I have just been sobbing as my 16 year old son has had to do everything,bless him he does his best, but knowing how messy my home is cause i just cant do it. i havent even managed to get in thr shower today..just sat like a useless person on my sofa, cause i need a new bed and it hurts more lying in it that not.

    my family dont understand, my sister just calls it my fuzzy leg, and not one of them visits or checks my son can cope.

    i dont know what to do, im on esa (have been for a while due to my depression) d i tell them now, or wait for the consultant to confirm?

    do i contact social services for help?

    do i apply for dla - or again do i have to wait

    sorry not a very positive post..im depserate to try and contiunue my course but today i dont know if i can.

    im usually postive, i do stuff but havent slept really in 5 nights and thats making it worse, my pain meds are useless..

    a very isolated and unhappy Beth
    BR 2nd April 2009
    Feel the fear and do it anyway!




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