Please help ME awareness by reposting this video

vikki_louise

Hello, Some of us are trying to raise awareness through a video about the true face of severe ME. So far lot sof people have posted it on facebook and twitter, and even fearne cotton put it on her page this week (which got more than 2000 views in a short space of time).

Please help by watching and reposting this video

http://www.youtube.com/watch?v=AUPkja02uR4

thank you

purplegirluk1

Hi Vikki, I have just watched the video and it was so sad. I have had M.E for 5 years now and am no longer bed bound but seeing the pictures bought it all back to me. It is a hidious illness and is made worse by peoples ignorance and non-acceptance. I also watched your clip from This Morning. I fit into the second group of sufferers now, living with my illness as best I can but it shows no signs of going away. This certainly wasn't how I saw my life. I hope the video helps raise awareness. I am so impressed at all you are doing, keep up the good work and take care.

Ruby_Moon

I am a bit disappointed with that video. I thought it was going to explain some more about ME, not just show bedbound people.
There is already a lot of stigma about this illness. The people who are ignorant about ME will still be ignorant. It is only really the people who have a degree of understanding anyway who will understand the meaning in the video.
Is there a particular reason why there isn't more information within the video?

vikki_louise

Ruby_Moon wrote: »

I am a bit disappointed with that video. I thought it was going to explain some more about ME, not just show bedbound people.
There is already a lot of stigma about this illness. The people who are ignorant about ME will still be ignorant. It is only really the people who have a degree of understanding anyway who will understand the meaning in the video.
Is there a particular reason why there isn't more information within the video?

My main aim was to inform people how severe ME can get and for how long it can go on, I didn't want it to be too wordy (I've got another video of an interview i did which talks about ME) and I wanted people to see actual people with it

vikki_louise

purplegirluk1 wrote: »

Hi Vikki, I have just watched the video and it was so sad. I have had M.E for 5 years now and am no longer bed bound but seeing the pictures bought it all back to me. It is a hidious illness and is made worse by peoples ignorance and non-acceptance. I also watched your clip from This Morning. I fit into the second group of sufferers now, living with my illness as best I can but it shows no signs of going away. This certainly wasn't how I saw my life. I hope the video helps raise awareness. I am so impressed at all you are doing, keep up the good work and take care.

Thank you purplegirl, I hope that one day you start to improve and get better.

Lots of love x