Finally got an apppointment for CDC and DLA forms, how depressing it is in B&W

blue_monkey_2

So, after 2 1/2 years we finally got an appointment for the child Developement Clinic to assess my son's ASD (he has ADHD and we think Aspergers) with some help from the School Nurse (as she once was). Write down everything that you think is 'not normal'. She is great though and will be coming with me to see the doctor. Apparently he 'was not on the list' to have his ASD assessed and the school nurse got him an appointment for 2 weeks later!!

Hmmm.... so I said 'well, that is hard because it is kind of normal to us now'. But I've got the pen and a book beside me all the time. I am half way down page 2 of the A5 book now. With small lines. All one line notes.

And now I've started doing my DLA form. 90 minutes on and still on Section 9. More to add than the last time too.

It's very depressing when you see everything written down and you have to 'think' about things more.

I've got PMT and am have early menopause so my hormones are all over the place, right now I feel I am going to spend most of Wednesday crying at this rate.

I just wanted to moan and let off some steam and get a break from the damn form. My fingers are hurting from all the writing. Hope no-one minds. It just made me think how !!!! my days are. How social services have not been round out house with all the screaming and fighting that goes on one can only guess. I am feeling embarrassed that the minute we are in the door all hell breaks loose. I hate facing my neighbours, they tell me they cannot hear us but there is no way that is true. I am sick of telling me son to do something 15 trillion times and still him taking no notice of me.

I think it is time for bed. Thanks listening to me whing, sorry.

System

It is depressing to see things written down. I got my ESA depression today, told me i'm in the support group, said something about a severe disability premium. Although i was relieved i wasn't happy. Because its real, its there in writing that i am too ill to work. It tells me right now my illness has the better of me and that is a depressing thought, BUT it does relieve some financial pressures, and that means i have time to think, time to think about the future and what can be done to help myself. I know it might not be the same thing but try not to see this as the worst thing.

This is a step forward for you and your son

[Deleted User]

moldy_plates wrote: »

Nothing what strict discipline and a little thorazine would not short out.....Good luck.

nice to know we have a consultant on board............not:mad:

blue_monkey_2

moldy_plates wrote: »

Nothing what strict discipline and a little thorazine would not short out.....Good luck.

Yes, you are probably right, I suppose I could shackle him into bed and stick him in nappies too. How easy would that make life then!!!!

Don't know why I did not think of that before.

Clearly as you read my post properly you'll see that my son has Autism (this is what Aspergers is) and this is what the appointment is for and this is what the list is for, if I added his ADHD to the list I'd have 3 pages there. I choose not to give my son drugs and I will choose to deal with it. I am also strict with him, thank you, that however does not stop him being as he is - and his condition has NOTHING to do with discipline at all but all about behaviour. Just shows how much you know really, you've made yourself look a complete !!!!!!

Of course drugs is the answer. How much easier would my life be - and cheaper to because it stops them eating. And clothes, as it stops them growing. I'd save a fortune. I think you are onto something now - I'll be off to get some drugs this morning. :rolleyes:

I guess we could all go back to the 'good old days' where he would be shoved in a home, shackled to a bed and given drugs and electric shocks into his brain to 'cure' him.

And why the heck did I spend 10 minutes answering that crap when I have other stuff to be doing!?!

blue_monkey_2

xXMessedUpXx wrote: »

This is a step forward for you and your son

I know, we have waited so long for this appointment, feels strange. No doubt we will be told and that will be it. I have a wonderful support group that I go to, without it I think I would be lost.

I've thought I might get a new Elite, my husband hates it and would rather carry him but he is getting too old now, my back hurts from the lifting etc.... I hope tomorrow I feel better about it when all of the questions start.

Angel3108

moldy_plates wrote: »

I was thinking more like a lobotomy, electro shock therapy is not very effective.... But I think ADHD is just an excuse for children to behave badly.

It sounds like you would benefit from a lobotomy yourself.

munchings-n-crunchings

Try having a disability, where you do not understand the world around you.
All the unwritten social rules and etiquettes, that everyone else has learnt through nursery and school, and you still have no idea about.
Try not understanding facial expressions, so you can't tell if someone is angry, sad or happy.

My daughter works so hard to try and fit in with her peer group.
She has to constantly watch, and see what everyone else is doing, and moderate her behaviour so she appears to be the same, yet she doesn't understand.
Her school day is exhausting, constantly having to question herself, just so she can try and be normal.

She knows she's weird. Her choice of phrase, not mine. I prefer eccentric and quirky. But it is part of who she is, and without her autism, then she wouldn't be so stunning.

IF you want an excuse to behave badly, then that involves choice.
Children with adhd that choice is not there, it compulsion. They do not have the same comprehension about risk and danger.
Given a choice, they would much rather not have these problems, and all the turmoil that goes with it.

blue_monkey, good luck with you assessment appointment.
I know so much seems to hinge on there referrals, yet afterwards you feel somewhat empty. Yes, it gives you answers, but then where do you go??
I know when my daughter's assessments were finished, I felt that things would change for her, but I still fight against ignorance, that continues.

Regards
Munchie

blue_monkey_2

moldy_plates wrote: »

I was thinking more like a lobotomy, electro shock therapy is not very effective.... But I think ADHD is just an excuse for children to behave badly.[/QUOTE]

And that phrase just there shows the ignorance that our children - and adults - are dealing with from the wrld around them - assumptions that other people have made that all ASD/ADHD kids are 'naughty'.

You would probably be surprised to know that it has NOTHING to do with 'bad behaviour' at all but frustration and anger because they do not understand the world around them and the people in it and how THEY behave - just and M&C said above.

It scares me to think my child is mixing in the world with people like yourself and the ignorance they have towards them.

joyciebird

moldy_plates wrote: »

Nothing what strict discipline and a little thorazine would not short out.....Good luck.

My daughter is only 4 yrs old and has autism, she can hardly talk and has several other physical problems, but she is able to work a computer and has the intelligent that, by reading your other posts surpasses yours by miles

No more comments, they are wasted on us

blue_monkey_2

I've been to the CDC today - complete waste of time. I've posted a huge rant on the ASD thread otherwise I would have taken it to bed with me tonight and will try and update here over the next few days but I have some stuff to get done at home too.

It was, however, a complete waste of time. The SHA who got me the appointment asked me to do a list of the 'odd' things he does so I did, apparently this was not what the doc wanted so the list was a waste of time.

School came and said that he was 'fine at school' but I had forgotten the IEP where it says (signed 2 weeks ago) he needs constant adult attention amongst other things. I can't believe I forgot it. But the school would throw in odd comments that backed up what I had on my list but the doctor disregarded them.

So, she told me that it is best 'to go back to the beginning' and start over from and 'make a list of 3 or 4 things that are most important'. If it was 3 or 4 things then I'd not have a problem.

I have NO idea what the doctor wants, the school did say that he was unlind to the other kids, would get anxious over little things, hated changes to routine and liked to know where he was at, would often sit and not move if he did not want to do anything, would mirror talk. The doctor said non of these were important and I had them on my list. I have no idea what she wants me to write down. I just think they want to give him drugs to 'calm him down' but I do not want this, I want to find out what the problem is first before giving him drugs.

*sigh* Not a good day. God, it would be SO much easier if this was about bad behaviour.

ged1980

moldy_plates wrote: »

Nothing what strict discipline and a little thorazine would not short out.....Good luck.

pity your mum or dad never got you sorted you still being an !!!


I know what your going through OP took us almost 4 years but son is doing a lot better now top of class is some classes at school so is worth it to help them dont let it get you down