Newly single parent with M.E

purplegirluk1

Thank you jazabelle - there doesn't seem to be one in my area but I will email them and see what they suggest.

I have just called adult services and spoke to a lovely lady who took all my details, basically she put that I probably did not need a daily care package but would find direct payments of use so I could use the money to get the help I need. Anyway she is going to make an appointmnet of an OT to come and see me, fingers crossed it wont take too long!!

jazabelle

May I ask what your area is, so I can see if I can find out who covers you? Or perhaps PM me if you don't want to say. Don't worry if you don't want to reveal.

purplegirluk1

Hi jazabelle, I live in Folkestone, Kent, thank you for your help. I would really prefer to move back with my parents but would need more room than they have. If I really could get this grant ot would mean my son and I would be able to live a proper life with a great support network.

vikki_louise

Hello, I'm sorry to hearyour struggling. I've got ME but live with my parents (and don't have kids). Do you know the ME parents message board (as in parents who have ME rather than parents of people with ME)? I can't remember the address but if you google it, it should come up. Its a board dedicated to supporting each other and sharing advice

Mojisola

jazabelle wrote: »

purplegirl - if you do go the disabled facilities grant way, it is quite a complicated process, but there is a charity called Anchor Staying Put which take care of everything for you.

My parents have had help from Anchor and they were brilliant!

jazabelle

Sorry it took so long to get back to you. Did a little research for you! You're right, Anchor sadly don't cover your area.

Environmental Health in your local council do offer Disabled Facilities Grants, but first you need to contact Occupational Therapy on 01303 224370 and ask them to send the recommendations straight to the agency underneath. The agency that helps you is called Shepway Home Improvement Agency, and they can be contacted on 01303 244434.


Basically your parents would make the claim, as you as their disabled dependant, as far as I know.


Hope this helps if you do go this route.

purplegirluk1

Oh thank you for your help, that is so kind of you. Well I called my OT yesterday and will be getting an appointment for a reassesment in the next few weeks so I will tell her about my thoughts and see how she takes it. Fingers crossed she will agree!