living with a chronic condition (part 4)

bigzippy

sammy10 wrote: »

Guess I will have to just carry on as I am and try to ignore it all but some days I wake up feeling whats the point. Im one of those people who pretends everything is ok but inside I feel like throwing myself under a bus.

Speaking of buses...(tenuous connection alert) ...if you get the mobility element of DLA then you would - regardless of whether you can drive or not - get money for travelling expenses...eg instead of getting a car allowance, you get taxi/bus/petrol for other drivers allowance. Then you could take your kids to school in a taxi? There are also taxi schemes that purely pick up your kids from your house and take them to the school, and the same in reverse. From what I understand they tend to use the same drivers for safety etc. HTH?

Paparika wrote: »

so i suggested i asked the guys n gals on here what relaxing spa type would be good.
Hydrotherapy? is one i can think of,

but i would love to know what other things are out there, good and bad points..

There's been mention of acupuncture before on here, as both a good and bad thing. So I think you'd take your chances with anything like that. I struggle with really hot baths/showers and sometimes it makes me really nauseous, but the jacuzzi bath was brilliant at the cottage. Esp after my fall in Portpatrick (slipped and landed on my elbow and back on essentially wet&seaweedy slaps of concrete :rolleyes:) - I was expecting to ache and be stiff for days and days but felt loads better within 48hrs after using the jacuzzi bath every evening...

Paparika

I'm still looking around for a treat. What i want (i think) is a pedicure, manicure, massage, facial...just a all over treat (but gentle)

jazabelle

That sounds nice. A lot of complementary treatment can be painful, so those just sound nice and relaxing

sammy10

bigzippy wrote: »

Speaking of buses...(tenuous connection alert) ...if you get the mobility element of DLA then you would - regardless of whether you can drive or not - get money for travelling expenses...eg instead of getting a car allowance, you get taxi/bus/petrol for other drivers allowance. Then you could take your kids to school in a taxi? There are also taxi schemes that purely pick up your kids from your house and take them to the school, and the same in reverse. From what I understand they tend to use the same drivers for safety etc. HTH?


.

Ive never applied for DLA Dont think I would get it. I do have a free bus pass but thats all. Thanks though.

bigzippy

sammy10 wrote: »

Ive never applied for DLA Dont think I would get it. I do have a free bus pass but thats all. Thanks though.

Why not apply for it? What've you got to lose? I think you'd have a good shot at it. Or at least ask your local CAB what help you might be entitled to?

sammy10

bigzippy wrote: »

Why not apply for it? What've you got to lose? I think you'd have a good shot at it. Or at least ask your local CAB what help you might be entitled to?

I might do. The trouble is when its bad its really bad but then I can have a run of being ok so Im really not sure how I would fill in the forms.

Will try CAB as well, thanks

kaj70

Hi, I just want to add that i have M.E. i have had it for almost 10 years, and i am at the stage where it probably wont improve anymore. i do seem to have relapses, bad days and sort of ok days. I can walk but i am very limited as i get sever exhaustion and pain. I am telling you this as it is worth applying for DLA, I get both the care and mobility componants. which have been a godsend. i now have an automatic car, which without i would be housebound.
With my car, a cupbored full of tablets and my lovely TENS machine i get by. but also being a single parent to 3 children, life can be somewhat of a struggle.

kaj70

sorry, i didnt even introduce myself...HI, hope you dont mind me joining you all so late, i didnt know this thread was here

bigzippy

sammy10 wrote: »

I might do. The trouble is when its bad its really bad but then I can have a run of being ok so Im really not sure how I would fill in the forms.

Will try CAB as well, thanks

I have been told, several times, to fill in the forms as if it's your worst ever day. Everyone (of us that I'm aware of at least) has the better days and the horrid days, as well as the ones somewhere in between. You have to fill it in as if it's the worst tho, as the worst come round all too often and the support has to be there for when it is the worst.

kaj70 wrote: »

sorry, i didnt even introduce myself...HI, hope you dont mind me joining you all so late, i didnt know this thread was here

Of course we don't! Pull up a pew If you wanna join us in the (not so old) Crock's Cafe too..? We're allowed "off topic" chatter there y'see...:rolleyes:

kaj70

Ohh thankyou, its very nice to have somewhere to discuss things like this. and a cup of tea would be good with the pew!!