The Compers Inn - Part 24

crin

Hi Katie if I can help at all if you pm me I will let you have my email addy. I had my stroke in 2006 but I am stuck with the results I'm afraid and it took quite a bit of counselling to get my head sorted. I was lucky that I went on a living with stroke course at a local charity and managed to meet a psychologist who specialised in ling term chronic illnesses, stroke and disability she was excellant.

Sorry about the muscle spasms Katie they are nasty especially in your back. Unfortunately apart from muscle relaxants which I am unable to take the doctors can't do anything. I use a sausage shaped thing full of barley that I warm up in the microwave as hot as I can stand and sit with that hoping against hope that it will help.

Try not to get too down the answer is to always look on the positives it is very hard but it does help a bit. hugs.

gingerchick

Katie, I want to thankyou for posting up the article on ms, what it feels like, and the spoon theory link.
Really makes you think about how many wasted 'spoons' I use, and how much I take for granted in my own life.

As a nurse I always try to be empathetic, but can never really understand what individuals are going through. I can be there for them to scream, cry, laugh, whatever they want. Not at me but at their situation.
I'm lucky in some ways that even though my ward is busy, I do get time, or I make time to sit with both patients and relatives and just let them 'talk' about whatever they want.
Often the best thing is not for me to talk but to listen. I don't have all the answers, nobody does, but I can just be there.
Admittedly, I don't do it as often as I'd like, but I do try.

I love the spoon theory and read that with a tear in my eye. No-one can fully know what people are going through, but the spoon theory helps to try to understand.

My biggest of hugs to you and if you ever want to scream, cry, rant, talk, laugh, I'm here if you need.

And crin, thanks for you input as well,
I've worked on a stroke unit and it is very hard, both physically and mentally, (and that's for me as a nurse who goes home at night)
Thankyou for sharing your story, you seem to have a fantastic outlook on life. I hope to take some of your outlook and Katie's storys with me forever.

(((Hugs)))

katiekittykat

gingerchick wrote: »

Katie, I want to thankyou for posting up the article on ms, what it feels like, and the spoon theory link.
Really makes you think about how many wasted 'spoons' I use, and how much I take for granted in my own life.

As a nurse I always try to be empathetic, but can never really understand what individuals are going through. I can be there for them to scream, cry, laugh, whatever they want. Not at me but at their situation.
I'm lucky in some ways that even though my ward is busy, I do get time, or I make time to sit with both patients and relatives and just let them 'talk' about whatever they want.
Often the best thing is not for me to talk but to listen. I don't have all the answers, nobody does, but I can just be there.
Admittedly, I don't do it as often as I'd like, but I do try.

I love the spoon theory and read that with a tear in my eye. No-one can fully know what people are going through, but the spoon theory helps to try to understand.

My biggest of hugs to you and if you ever want to scream, cry, rant, talk, laugh, I'm here if you need.

And crin, thanks for you input as well,
I've worked on a stroke unit and it is very hard, both physically and mentally, (and that's for me as a nurse who goes home at night)
Thankyou for sharing your story, you seem to have a fantastic outlook on life. I hope to take some of your outlook and Katie's storys with me forever.

(((Hugs)))

Thank you so much for that hun - i have tears streaming down my face cos of your kindness.

I think cos i don't actually have ms people assume that i am ok but i'm not i suffer from the same things as people with ms but i get over looked.

I have have prolasped discs which they won't sort out xxx

Thanks again your words really mean a lot xxxx

gingerchick

Aww hun, I was just going to say, I'm sorry for making you cry, but I'm not going to say that.
Because it's fine to cry.
That is one thing I've learnt, we all cry and shouldn't be ashamed to.

take care
xxx

gingerchick

Hugs to all who need them.
I'm off to work now, hope everyone has a lovely evening and lots sprinkling of lucky comping fairy dust for comps ending 30th.
Hope we all get some wins soon!

xxx

katiekittykat

gingerchick wrote: »

Aww hun, I was just going to say, I'm sorry for making you cry, but I'm not going to say that.
Because it's fine to cry.
That is one thing I've learnt, we all cry and shouldn't be ashamed to.

take care
xxx

Thanks again - i just re read the spoon theory so that did it too xxx

katiekittykat

Anyway all i am off now for a nice soak in the bath.

Thank you everyone for your kind and supportive words xxxx

crin

night night Katie take it easy. x

katiekittykat

Night night crin xxxx

Mamzie

KKK, the spoon therory is great, its exactly how I try and manage my days.

it sounds like you have a few different problems and illness, all fighting for their bit of you. I can only sympathise with the back pain as I have lumbar bulges (prolapses) and hip probs. I find the frustration of what I would like to do compared with what I can do is huge, and can easily get me very depressed.

Have you ever thought of asking about a pain clinic refferal hun. They have specialised pain management and living/coping stratgies that often don't occur in mainstream NHS. Esp in the surgical side, drs seem to look for the magic tablet or op that could fix us, when sadly some of us are kinda unfixable and need help finding our new abilities. My Mam atttended a 4 week live in course years ago, and came out like a new person. Then when I became ill having Llewellyn, the things we had learnt for my Mam managed to help me as well.