DLA help and support, please?

mealone

SaucySecrets wrote: »

Blood tests suggest I don't have rheumatoid arthritis, but are 'borderline'. Scans apparently show massive deterioration. No actual diagnosis, though, I am always just signed off with RA and told that any pain etc I get is from that or the strain.

I have to phone back at 5 to see if my dr will be able to see me tomorrow, and I'll tell him how much its affecting me and how much I need help. Hopefully he'll then try and diagnose me himself...Nobody seems to want to suggest anything other then that it's RA and there is nothing they can do. I think its because they don't want to disagree with anyone else, and I've seen so many people, but no one has actually done anything.

How do you all cope with it? It's got so much worse so fast...I used to work in a nursery and hold two babies at a time effortlessly, now I can't hold my own nephews for more then a few seconds, literally.

Have you heard of sero-negative arthritis? It mimiced RA in my case until properly dignosed by a rhummy.

HopeAndDriftWood

I haven't heard of sero-negative arthritis, I'll google it now and see what it is...thank you!
I've been feeling terrible for a long time, but over the last 5 months it's been getting so much worse..I don't think I can cope with this anymore...:( I'm having a look for support groups but there doesn't seem to be one near me and travelling is so, so hard.