will we get any help

anthonysh

hi my chikd has long qt syndrome and will have it the rest of there life . could you tell me if there is any help that we could get to wards on going trips to the hospitals . we are working and not intitled to working tax credits . thansk in advance

cattie

If you are on a low income you may be able to claim the costs of travel to the hospital for your child. You would need form HC2 or HC3 to claim. You have to travel by the cheapest means possible.

See here for a bit more info http://www.adviceguide.org.uk/index/family_parent/health/help_with_health_costs.htm#help_with_travel_costs_for_nhs_treatment

Js_Other_Half

http://www.bbc.co.uk/health/conditions/longqt1.shtml describes what it is if anyone else can be of any help.

anthonysh

we are not on a low wage as we cant clame tax credits or anything like that . but we are loosing a days pay every visit . so i dont think i can get help

tori.k

why not look into DLA, they will help if she has care/mobilty needs, i gather its a nightmare of a process to do,(from reading whats on here) my foster son get's £18 mobilty which cover's the cost of his hospital/school travel

SuziQ

You would get DLA if you can demonstrate that your son has care/mobility needs which are substantially above the needs of a child the same age without his condition. It is qute hard to apply-if you have a look at the form you will see what they ask.
http://www.dwp.gov.uk/advisers/claimforms/dla1a_child_print.pdf
You would be better getting help filling the forms in if you decide to apply-either a benefit advisor at CAB or maybe a specialist nurse at the hospital could help you. Is there a support group for this condition that could advise you-google the name of it?