advice needed

dee_mum_of_3

Thanks for your advice,I filled the form in as absolutely honestly as I could basing it on a very bad period ,I think that M.E has to be one of the hardest things to describe bcos unless you live with it you cant see the impact that it causes.

I myself dont work at the moment(i have younger ds) and with my son being how he I am unable to work as yet as he needs quite a lot of care many times a month.

I was hoping that with the information in the form and the consultants report that it would be enough as I (the same as everyone else dont really want the 'effort' of an appeal).

At the minute hes newly diagnosed and although hes had it 5 years now, having the diagnosis has hit him hard he cant now think well its just a virus, it can go as quick as it came, so at the moment we are just living with it, no doubt as he becomes more accustomed to it he will be able to think of ways out and certainly pacing and support groups are for the future

I really appreciate the help you are giving me thanks again.

sunnyone

The last published figures for sucessful appeals is 58%, the figures were from 2004 (they are available from the DWP website), the websites also gives you the stats for all kinds of things like how many people were awarded DLA for each illness

http://www.dwp.gov.uk/asd/wandp.asp

Good luck with your sons claim, my son is 12 and he misses alot of school with a complicated condition he has chronic idiopathic urticaria with co-morbid angio-odeama and allergic airways disease, he produces anti-bodies to his own DNA, has hundreds of allergies which causes him to have a compromised immune system but hes to unwell for immunotherapy. Hopefully my son will be well enough for the treatment soon but he cant have it intraveinously because of the allergic airways disease. Hes been ill since he was 6 and it started when we were house hunting and he came into contact with a cat, such a small thing which has had life changing effects

My sons pead. immunologist thinks he should claim DLA but ATM he dosnt really need extra care or have mobility needs, if he does need extra help I will apply then, on his behalf.

Its awful when you have a sick child, I want to hurt for him to make it go away, thats what mums do but all I can do is make sure he takes his meds (8 types ATM) and sooth him when he needs it. I sometimes feel so helpless when hes very ill and I cant do anything to help him.

sunnyone

dee_mum_of_3

Sunnyone Im so sorry your son has such a horrid disease - the point you make about him not needing it at the moment is very valid and thats one of the reasons I havent even tried before now but my son is losing such a lot of time at school and his needs are becoming 'more' that I feel that I need to set the ball rolling so to speak.

I hope one day soon your son will regain some degree of health and be able to start his treatment.

sunnyone

Thank you dee mum of 3, ME is very diffrent from my sons illness and I hope that the DWP understand it better than they did in the `90s, the WHO have classified it as a neurological condition but until there is more reasearch no test or full treatment can be investigated thourghly.

The link I posted will also give you the DMs (desicion makers) handbook, just use the search box.

my sons attendance is about 60% ATM and he comes home regularly because the school worry incase they could be liable, our daft GP keep using the words "potencialy fatal" in the illness certificates that they ask for to justify my sons staying indoors and avoiding anything that could cause a reaction. Hes ill but I dont lose much sleep worrying about fatality ATM.

sunnyone

richard9991

dee_mum_of_3 wrote: »

Ive just applied for DLA for my son who is 13- The application was posted on Thursday and on Saturday morning I got a letter from them saying they had written to the consultant,is this unusually quick? is this good or normal? and can anyone explain to me what the rates are??

thanks

initial dla claims are dealt with by the disability benefits centre which is regional so claims do tend to be quicker as thet are not dealing with so many however after 6 months they are sent to the disability unit in blackpool which deals with the whole country so is slower. good luck with your claim.

dee_mum_of_3

Well so much for me thinking it was gonna be a swift affair ...........still waiting!!!